Herlao Irish Alysa V, Maceda Ebner Bon G, Abacan Mary Ann R, de Castro-Hamoy Leniza G, Alcausin Maria Melanie Liberty B
Institute of Human Genetics, National Institutes of Health, University of the Philippines Manila.
Department of Pediatrics, College of Medicine and Philippine General Hospital, University of the Philippines Manila.
Acta Med Philipp. 2023 Aug 29;57(8):5-14. doi: 10.47895/amp.vi0.4981. eCollection 2023.
Telegenetics has been a very useful platform to continue the different services offered by the clinical genetics team especially during the COVID-19 pandemic, when this mode of care had been maximized.
This paper aimed to present the process of telegenetics in a tertiary hospital and the feedback for this service through patient satisfaction surveys.
Telegenetics consultation is divided into three phases: pre-consultation, consultation, and post-consultation. Patient satisfaction in the delivery of genetics services were obtained through a survey answered by patients/caregivers after telegenetics consultation. Ratings of patient satisfaction on telegenetics consultation during the pandemic (September 2020 to February 2021) were compared from that of face-to-face consultations before the pandemic (September 2019 to February 2020).
In 2020, there were a total of 1,228 consultations made via telegenetics. Of which, 319 consultations were for the metabolic service, 138 for dysmorphology, 207 for genetic counseling, and 564 for dietary counseling. New patients comprised 13.84% of the consultations and 86.16% were from follow-up patients. In 2021, there were a total of 3,124 consultations made via telegenetics. Of which, 617 consultations were for the metabolic service, 688 for dysmorphology, 961 for genetic counseling, and 858 for dietary counseling. New patients comprised 12.93% of the consultations and 87.07% were from follow-up patients. Over a period of 6 months, pre-pandemic (face-to-face consultation) and pandemic (telegenetics) patient satisfaction survey results showed no significant difference on the results for both new patient consultations and follow-up patient consultations that is a standard satisfactory rating of at least 3 (satisfactory) on customer satisfaction by more than 70% of the respondents.
Patient satisfaction ratings on the utility of telegenetics was comparable to that of face-to-face consultations. Its use has shown benefits like cost-effectiveness, time efficiency, improved accessibility, and psychological benefits as some patients fear a hospital setting during the pandemic. It also has limitations like possible technical difficulties during consultations and limited opportunity for physical examination, establishing rapport, and exploring psychosocial issues. Hence it is important to consider the possibility of a telegenetics consultation as an alternative to a face-to-face consultation.
远程遗传学一直是一个非常有用的平台,可延续临床遗传学团队提供的不同服务,尤其是在新冠疫情期间,这种护理模式得到了最大化利用。
本文旨在介绍一家三级医院的远程遗传学流程以及通过患者满意度调查获得的该服务反馈。
远程遗传学咨询分为三个阶段:咨询前、咨询中和咨询后。通过患者/护理人员在远程遗传学咨询后回答的调查问卷来获取患者对遗传学服务提供情况的满意度。将疫情期间(2020年9月至2021年2月)患者对远程遗传学咨询的满意度评分与疫情前(2019年9月至2020年2月)面对面咨询的满意度评分进行比较。
2020年,通过远程遗传学共进行了1228次咨询。其中,319次咨询是关于代谢服务,138次是关于畸形学,207次是关于遗传咨询,564次是关于饮食咨询。新患者占咨询总数的13.84%,86.16%来自复诊患者。2021年,通过远程遗传学共进行了3124次咨询。其中,617次咨询是关于代谢服务,688次是关于畸形学,961次是关于遗传咨询,858次是关于饮食咨询。新患者占咨询总数的12.93%,87.07%来自复诊患者。在6个月的时间里,疫情前(面对面咨询)和疫情期间(远程遗传学)的患者满意度调查结果显示,新患者咨询和复诊患者咨询的结果没有显著差异,即超过70%的受访者对客户满意度的标准满意评分至少为3(满意)。
患者对远程遗传学效用的满意度评分与面对面咨询相当。其使用已显示出成本效益、时间效率、可及性提高以及心理益处等优势,因为一些患者在疫情期间害怕去医院。它也有局限性,如咨询期间可能出现技术困难,体格检查、建立融洽关系和探讨心理社会问题的机会有限。因此,重要的是要考虑将远程遗传学咨询作为面对面咨询的替代方案的可能性。