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社区在支持姑息治疗和临终关怀方面的富有同情心的参与:大流行后时代的挑战。

Compassionate engagement of communities in support of palliative and end-of-life care: challenges in post-pandemic era.

作者信息

Vitorino Joel Vieira, Duarte Beatriz Veiga, Ali Amira Mohammed, Laranjeira Carlos

机构信息

School of Health Sciences, Polytechnic University of Leiria, Leiria, Portugal.

Palliative Care Unit, Portuguese Institute of Oncology of Coimbra, Coimbra, Portugal.

出版信息

Front Med (Lausanne). 2024 Oct 18;11:1489299. doi: 10.3389/fmed.2024.1489299. eCollection 2024.

DOI:10.3389/fmed.2024.1489299
PMID:39493715
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11527659/
Abstract

Over the years, humanity has faced various global crises of different kinds that have caused great suffering in the community, such as wars, slavery, torture or the Holocaust, but also climate change, economic crises, or sanitary disasters. The recent pandemic posed a barrier to palliative and End-of-Life (EoL) care, as the need for physical distance made it difficult to retain essential human interactions while minimizing the risk of viral transmission. During the COVID-19 pandemic, the robustness of supportive networks (i.e., family, friends, neighbors, and community members) determined whether someone experienced a calm death at home or an unnecessary hospital admission, labeled as an 'emergency'. In this vein, active establishment and strengthening of such networks are the foundation of compassionate community efforts. Firstly, providing both physical and emotional support to the entire network of caregivers enhances their ability to care for others and improves the overall experience of death, including the process of dying and the ensuing bereavement period. Furthermore, individuals can enhance their own physical and mental health by practicing compassion. The ability of networks to withstand and recover from physical and emotional challenges, while maintaining strong and supportive relationships among its members, depends on the health and overall well-being of those members. Therefore, we argue that active community participation and death education can strengthen a community's capacity to assist people facing death, dying, and bereavement.

摘要

多年来,人类面临着各种不同类型的全球危机,这些危机给社会带来了巨大痛苦,如战争、奴隶制、酷刑或大屠杀,还有气候变化、经济危机或卫生灾难。最近的这场大流行病给姑息治疗和临终关怀带来了障碍,因为保持身体距离的要求使得在尽量降低病毒传播风险的同时,难以维持必要的人际互动。在新冠疫情期间,支持网络(即家人、朋友、邻居和社区成员)的稳固程度决定了一个人是在家中平静离世,还是被送往医院,被贴上“急诊”的标签。从这个意义上说,积极建立和加强这样的网络是富有同情心的社区努力的基础。首先,为整个护理人员网络提供物质和情感支持,能增强他们照顾他人的能力,改善死亡的整体体验,包括临终过程和随后的丧亲期。此外,个人通过践行同情心可以增强自身的身心健康。网络抵御身体和情感挑战并从中恢复的能力,同时维持其成员之间牢固且相互支持的关系,取决于这些成员的健康和整体福祉。因此,我们认为社区的积极参与和死亡教育可以增强社区帮助面临死亡、临终和丧亲之痛的人们的能力。

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