Instituto de Formación E Investigación CUDECA, Fundación CUDECA Instituto IBIMA-BIONAND, Grupo CA15, Málaga, Spain.
iLIVE Consortium.
BMC Palliat Care. 2024 May 7;23(1):117. doi: 10.1186/s12904-024-01424-4.
The integral model of Palliative Care recognizes the community as essential element in improving quality of life of patients and families. It is necessary to find a formula that allows the community to have a voice. The aim of this scoping review is to identify barriers and facilitators to engage community in PC.
Systematic search was conducted in NICE, Cochrane Library, Health Evidence, CINAHL and PubMed database.
Palliative care, End of life care, community networks, community engagement, public engagement, community participation, social participation, barriers and facilitators.
Nine hundred seventy-one results were obtained. Search strategy and inclusion criteria yielded 13 studies that were read in detail to identify factors influencing community engagement in palliative care, categorized into: Public health and public engagement; Community attitudes towards palliative care, death and preferences at the end of life; Importance of volunteers in public engagement programs; Compassionate communities.
Societal awareness must be a facilitated process to catalyse public engagement efforts. National policy initiatives and regional system support provide legitimacy and focus is essential for funding. The first step is to get a sense of what is important to society, bearing in mind cultural differences and to channel those aspects through health care professionals; connecting the most assistential part with community resources. The process and long-term results need to be systematically evaluated.
缓和医疗的整体模式将社区视为提高患者和家庭生活质量的重要组成部分。有必要找到一种让社区发声的方法。本次范围综述的目的是确定社区参与缓和医疗的障碍和促进因素。
在 NICE、Cochrane 图书馆、健康证据、CINAHL 和 PubMed 数据库中进行了系统搜索。
缓和医疗、临终关怀、社区网络、社区参与、公众参与、社区参与、社会参与、障碍和促进因素。
共获得 971 项结果。通过搜索策略和纳入标准，共筛选出 13 项研究进行详细阅读，以确定影响社区参与缓和医疗的因素，分为：公共卫生和公众参与；社区对缓和医疗、死亡和临终偏好的态度；志愿者在公众参与计划中的重要性；富有同情心的社区。
社会意识必须是一个促进公众参与的过程。国家政策倡议和区域系统支持提供合法性，重点关注资金至关重要。第一步是了解社会重视什么，同时考虑文化差异，并通过医疗保健专业人员来引导这些方面；将最具辅助作用的部分与社区资源联系起来。需要对这一过程和长期结果进行系统评估。
