Barreto Camila, Silva Marcelle Miranda da, Fernandes Ana Fátima Carvalho, Yanez Romel Jonathan Velasco, Laranjeira Carlos
USF Buarcos, Local Health Unit of Baixo Mondego, Av. Dr. Mário Soares 64, 3080-254 Figueira da Foz, Portugal.
School of Health Sciences, Polytechnic University of Leiria, Campus 2, Morro do Lena, Alto do Vieiro, Apartado 4137, 2411-901 Leiria, Portugal.
Healthcare (Basel). 2025 Jul 1;13(13):1576. doi: 10.3390/healthcare13131576.
: The prevalence of people with incurable and progressive diseases in primary health care is high. Family doctors and nurses must be active agents in the early identification of palliative needs and the implementation of palliative approaches in cases of low to intermediate complexity. While there is a need for early referral of more complex palliative care (PC) cases to specialized teams, primary health care (PHC) professionals lack the confidence or skill to describe their role. This study sought to explore and describe (a) the practices of PHC professionals regarding their PC provision; (b) the barriers regarding access and referral of patients to specialized PC services; and (c) the strategies used or recommended to mitigate difficulties in accessing and referring to specialized PC. : A descriptive qualitative study was carried out, using five focus groups conducted with nursing and medical staff at three local health units in the central region of Portugal. Semi-structured interviews were conducted, and then recorded, transcribed, and analyzed through a thematic analysis approach. The reporting of this research follows the COREQ checklist. : In total, 34 PHC professionals participated in this study. The majority of participants were women (n = 26) and family doctors (n = 24). Their mean age was 43.8 ± 11.9 (range: 29 to 65 years). The findings were organized into three core themes: (1) the contours of palliative action developed by PHC teams; (2) barriers to access and safe transition between PHC and specialized PC; and (3) ways to mitigate difficulties in accessing and referring to specialized PC. : Our findings highlight the fundamental role of PHC professionals in providing primary PC, and in identifying PC needs and referring patients to PC early on, while exposing the systemic and interpersonal challenges that hinder these processes. To overcome these challenges, it is essential to invest in the development of integrated care models that promote practical, low-bureaucratic referral processes and capture the human resources necessary for the adequate follow-up of users.
在初级卫生保健中,患有无法治愈的进行性疾病的人群比例很高。家庭医生和护士必须积极主动地尽早识别姑息治疗需求,并在低至中等复杂程度的病例中实施姑息治疗方法。虽然需要将更复杂的姑息治疗(PC)病例尽早转诊至专业团队,但初级卫生保健(PHC)专业人员缺乏描述其作用的信心或技能。本研究旨在探索和描述:(a)初级卫生保健专业人员提供姑息治疗的实践;(b)患者获得专业姑息治疗服务以及转诊方面的障碍;(c)为缓解获得和转诊至专业姑息治疗的困难而使用或推荐的策略。:开展了一项描述性定性研究,在葡萄牙中部地区的三个当地卫生单位与护理和医务人员进行了五次焦点小组讨论。进行了半结构化访谈,然后进行记录、转录,并通过主题分析方法进行分析。本研究报告遵循COREQ清单。:共有34名初级卫生保健专业人员参与了本研究。大多数参与者为女性(n = 26)和家庭医生(n = 24)。他们的平均年龄为43.8±11.9岁(范围:29至65岁)。研究结果归纳为三个核心主题:(1)初级卫生保健团队开展的姑息治疗行动概况;(2)初级卫生保健与专业姑息治疗之间获得服务及安全过渡的障碍;(3)缓解获得和转诊至专业姑息治疗困难的方法。:我们的研究结果凸显了初级卫生保健专业人员在提供初级姑息治疗、识别姑息治疗需求以及尽早将患者转诊至姑息治疗方面的重要作用,同时揭示了阻碍这些过程的系统性和人际性挑战。为克服这些挑战,必须投资发展综合护理模式,以促进实际的、低官僚化的转诊流程,并获取对用户进行充分随访所需的人力资源。