电子健康记录平台上的性别、性取向和性别认同数据收集：一项全国性横断面调查。
Sex, sexual orientation, and gender identity data collection across electronic health record platforms: a national cross-sectional survey.
作者信息
Streed Carl G, Navarra Maylene, Beach Lauren B, Phillips Gregory, Hackenberger Paige N, Jordan Sumanas
机构信息
Section of General Internal Medicine, Boston University Chobanian and Avedisian School of Medicine, Boston, MA 02118, United States.
GenderCare Center, Boston Medical Center, Boston, MA 02118, United States.
出版信息
JAMIA Open. 2024 Nov 4;7(4):ooae127. doi: 10.1093/jamiaopen/ooae127. eCollection 2024 Dec.
OBJECTIVES
To assess the current state of sex, sexual orientation, and gender identity (SSOGI) data collection options in US electronic health record (EHR) platforms.
MATERIALS AND METHODS
We utilized an anonymous survey distributed via purposive snowball sampling to assess EHR platforms across the United States.
RESULTS
Of 90 surveys started, 41 (45.6%) were completed and used for data analysis. Respondents represented a geographically diverse sample of health care centers across the United States. EPIC was the most used EHR platform (70.7%) followed by Cerner (9.8%). Across reported platforms, a majority utilized structured fields to collect and document patient SSOGI data ( = 25, 61.0%). There was variability across platforms regarding SSOGI data elements collected. No platform collected all recommended SSOGI data elements.
DISCUSSION
Significant variation exists across EHR platforms and across health care settings using the same EHR platform.
CONCLUSION
National standards need to be followed for SSOGI data collection in EHR platforms.
目的
评估美国电子健康记录（EHR）平台中性别、性取向和性别认同（SSOGI）数据收集选项的现状。
材料与方法
我们通过立意滚雪球抽样法进行了一项匿名调查，以评估美国各地的EHR平台。
结果
在开始的90份调查问卷中，41份（45.6%）完成并用于数据分析。受访者代表了美国各地医疗中心的一个地理分布多样的样本。EPIC是使用最多的EHR平台（70.7%），其次是Cerner（9.8%）。在报告的所有平台中，大多数利用结构化字段来收集和记录患者的SSOGI数据（n = 25，61.0%）。各平台在收集的SSOGI数据元素方面存在差异。没有一个平台收集了所有推荐的SSOGI数据元素。
讨论
EHR平台之间以及使用同一EHR平台的不同医疗机构之间存在显著差异。
结论
EHR平台中SSOGI数据收集需要遵循国家标准。
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