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本文引用的文献

1
Seeing the person before the numbers: Personas for understanding patients' life stories when using patient-reported outcome measures in practice settings.在关注数字之前先了解人:在实践环境中使用患者报告结局测量时用于理解患者生活故事的人物角色。
Int J Med Inform. 2023 Apr;172:105016. doi: 10.1016/j.ijmedinf.2023.105016. Epub 2023 Feb 2.
2
Reporting and conducting patient journey mapping research in healthcare: A scoping review.报告和开展医疗保健患者就医流程研究:范围综述。
J Adv Nurs. 2023 Jan;79(1):83-100. doi: 10.1111/jan.15479. Epub 2022 Nov 3.
3
Contextualizing Online Laboratory (lab) Results and Mapping the Patient Journey.上下文关联在线实验室 (lab) 结果并绘制患者就诊路径图。
Stud Health Technol Inform. 2022 Jun 29;295:175-178. doi: 10.3233/SHTI220690.
4
Cancer statistics, 2022.癌症统计数据,2022 年。
CA Cancer J Clin. 2022 Jan;72(1):7-33. doi: 10.3322/caac.21708. Epub 2022 Jan 12.
5
Anxiety, depression and urological cancer outcomes: A systematic review.焦虑、抑郁与泌尿系统癌症结局:系统综述。
Urol Oncol. 2021 Dec;39(12):816-828. doi: 10.1016/j.urolonc.2021.08.003. Epub 2021 Sep 6.
6
Cancer statistics for the year 2020: An overview.2020年癌症统计数据概述。
Int J Cancer. 2021 Apr 5. doi: 10.1002/ijc.33588.
7
Global Cancer Statistics 2020: GLOBOCAN Estimates of Incidence and Mortality Worldwide for 36 Cancers in 185 Countries.《全球癌症统计数据 2020:全球 185 个国家和地区 36 种癌症的发病率和死亡率估计》。
CA Cancer J Clin. 2021 May;71(3):209-249. doi: 10.3322/caac.21660. Epub 2021 Feb 4.
8
Patient outcomes, patient experiences and process indicators associated with the routine use of patient-reported outcome measures (PROMs) in cancer care: a systematic review.与癌症护理中常规使用患者报告结局测量(PROMs)相关的患者结局、患者体验和流程指标:系统评价。
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9
Healthcare use and costs in adult cancer patients with anxiety and depression.癌症患者伴发焦虑和抑郁的医疗保健使用情况和费用。
Depress Anxiety. 2020 Sep;37(9):908-915. doi: 10.1002/da.23059. Epub 2020 Jun 2.
10
Patient-reported outcomes and experiences from the perspective of colorectal cancer survivors: meta-synthesis of qualitative studies.从结直肠癌幸存者角度看患者报告的结局与经历:定性研究的元整合
J Patient Rep Outcomes. 2020 Apr 25;4(1):27. doi: 10.1186/s41687-020-00195-9.

使用旅程地图来理解癌症诊疗过程中患者报告的结局指标。

Using journey maps to understand patientreported outcome measures in the cancer journey.

作者信息

Kwon Jae-Yung, Moynihan Melissa, Wolff Angela C, Irlbacher Geraldine, Joseph Amanda L, Wilson Lorraine, Horlock Hilary, Hung Lillian, Lambert Leah K, Lau Francis, Sawatzky Richard

机构信息

School of Nursing, University of Victoria, Victoria, BC; Institute on Aging and Lifelong Health, Victoria, BC.

School of Nursing, University of Victoria, Victoria, BC.

出版信息

Can Oncol Nurs J. 2024 Nov 1;34(4):443-476. doi: 10.5737/23688076344443. eCollection 2024 Fall.

DOI:10.5737/23688076344443
PMID:39507548
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11537440/
Abstract

PURPOSE

The purpose of this qualitative study is to demonstrate the use of patient-reported outcome measure-based journey maps in facilitating clinicians' ability to communicate with patients about their well-being at each phase of their cancer journey.

METHODS

Individual semi-structured online and phone interviews were conducted with older adults in British Columbia, Canada. Participants (n = 6) were asked to describe their cancer experiences associated with their well-being score using the Edmonton Symptom Assessment System revised questionnaire throughout their cancer journey (i.e., pre-diagnosis, diagnosis, treatment, to post-treatment).

RESULTS

Six older adults who received cancer treatment were interviewed. Six journey maps were developed with evidence of fluctuation in participants' level of well-being through their cancer journeys.

CONCLUSION

Journey maps can facilitate patient-clinician communication for tailoring interventions and draw clinicians' attention to additional prompts to better understand patients' well-being throughout the cancer journey.

摘要

目的

本定性研究的目的是证明基于患者报告结局测量的旅程地图在促进临床医生与患者就其癌症旅程各阶段的健康状况进行沟通方面的作用。

方法

对加拿大不列颠哥伦比亚省的老年人进行了个体半结构化在线和电话访谈。参与者(n = 6)被要求使用埃德蒙顿症状评估系统修订问卷描述他们在整个癌症旅程(即诊断前、诊断、治疗、治疗后)中与健康评分相关的癌症经历。

结果

对6名接受癌症治疗的老年人进行了访谈。绘制了6张旅程地图,显示出参与者在整个癌症旅程中健康水平的波动情况。

结论

旅程地图有助于医患沟通以定制干预措施,并促使临床医生注意其他提示,以便在整个癌症旅程中更好地了解患者的健康状况。