多发性骨髓瘤患者的生活经历及姑息治疗方法：一项扎根理论研究。
The experiences of living with multiple myeloma and a palliative approach to care: A grounded theory study.
作者信息
Weerahandi Ambereen, Sinclair Shane, Raffin-Bouchal Shelley, Watson Linda Christine, Lemieux Laurie
机构信息
Faculty of Nursing, University of Calgary, 2500 University Drive NW, Calgary, AB.
Cumming School of Medicine, University of Calgary, 3330 Hospital Drive NW, Calgary, AB.
出版信息
Can Oncol Nurs J. 2024 Nov 1;34(4):539-561. doi: 10.5737/23688076344539. eCollection 2024 Fall.
PURPOSE
Multiple myeloma is an incurable hematologic cancer. A palliative approach to care can be used in conjunction with curative therapy to alleviate suffering, but is underutilized in the hemato- oncology population. The purpose of this study was to explore living with multiple myeloma and individuals' experiences with, and perceptions of a palliative approach in their care.
METHODS
Straussian grounded theory was employed. Ten individuals with multiple myeloma participated between October 2021 and May 2022.
RESULTS
A theoretical model depicting the process of living with multiple myeloma was developed. Seven categories emerged from the data, as well as a core category: 'existing in the liminal space between living with and dying from multiple myeloma'. Results demonstrate that a palliative approach to care was inconsistently utilized.
CONCLUSIONS
The model designed from the participant data offers an explanation of the process of living with multiple myeloma and how a palliative approach to care can be utilized to help these individuals.
目的
多发性骨髓瘤是一种无法治愈的血液系统癌症。姑息治疗方法可与治愈性疗法联合使用以减轻痛苦，但在血液肿瘤患者群体中未得到充分利用。本研究的目的是探讨多发性骨髓瘤患者的生活状况以及他们在护理中对姑息治疗方法的体验和看法。
方法
采用施特劳斯扎根理论。2021年10月至2022年5月期间，10名多发性骨髓瘤患者参与了研究。
结果
构建了一个描述多发性骨髓瘤患者生活过程的理论模型。数据中出现了七个类别以及一个核心类别：“处于与多发性骨髓瘤共存和死于多发性骨髓瘤之间的临界空间”。结果表明，姑息治疗方法的使用并不一致。
结论
根据参与者数据设计的模型解释了多发性骨髓瘤患者的生活过程以及如何利用姑息治疗方法来帮助这些患者。
Zotero 插件