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儿童哮喘:为参与日常活动而持续关注呼吸——需要支持。

Asthma as a child: continuous attentiveness to breathing to participate in everyday activities - need for support.

作者信息

Sundal Hildegunn

机构信息

Associate Professor, Molde University College, Molde, Norway.

出版信息

J Res Nurs. 2024 Sep 27:17449871241264742. doi: 10.1177/17449871241264742.

Abstract

BACKGROUND

Asthma is one of the most common chronic diseases in childhood.

AIMS

This study explores the experiences of participating in everyday activities among children with asthma.

METHODS

The study employed a qualitative design and was grounded in a hermeneutic-phenomenological approach. The data were collected through in-depth interviews with four children aged 9-12 diagnosed with asthma.

RESULTS

One theme was 'heavy breathing stopping the body in motion', and subthemes were as follows: 'experiencing intrusive wheezing', 'calming one's breath to participate' and 'being sick and refraining from participating'. Another theme was 'help in everyday life and support to participate', and subthemes were as follows: 'taking the necessary asthma medicine', 'being understood and met as sick' and 'adapting one's leisure activities'.

CONCLUSIONS

To participate in everyday activities, children with asthma require insight into and an understanding of the importance of taking asthma medicine as recommended. They also need help in everyday life and support to participate in everyday activities. Children taking care of their own illnesses and listening to their bodies provide them with the greatest degree of participation in activities in their everyday lives. These findings represent an important contribution to the understanding of nursing care for children with asthma.

摘要

背景

哮喘是儿童期最常见的慢性病之一。

目的

本研究探讨哮喘患儿参与日常活动的经历。

方法

本研究采用质性设计,基于诠释现象学方法。通过对4名9至12岁被诊断为哮喘的儿童进行深入访谈收集数据。

结果

一个主题是“剧烈呼吸使身体无法活动”,其亚主题如下:“经历侵扰性喘息”“平静呼吸以参与”以及“生病且避免参与”。另一个主题是“日常生活中的帮助与参与支持”,其亚主题如下:“服用必要的哮喘药物”“作为病人被理解与满足需求”以及“调整休闲活动”。

结论

为了参与日常活动,哮喘患儿需要了解并明白按医嘱服用哮喘药物的重要性。他们在日常生活中也需要帮助以及参与日常活动的支持。照顾好自己的疾病并倾听身体声音的儿童在日常生活活动中参与度最高。这些发现对理解哮喘患儿的护理具有重要贡献。

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