da Silva Mauricio de Almeida Pereira, Corradi-Perini Carla
Bioethics Graduate Program, Pontifícia Universidade Católica do Paraná, Curitiba, Paraná, Brazil.
Indian J Palliat Care. 2023 Jul-Sep;29(3):234-242. doi: 10.25259/IJPC_292_2022. Epub 2023 Jul 5.
Decisions in end-of-life care are influenced by several factors, many of which are not identified by the decision maker. These influencing factors modify important decisions in this scenario, such as in decisions to adapt to therapeutic support. This presented scoping review aims to map the factors that influence end-of-life care decisions for adult and older adult patients, by a scoping review. The review was carried out in 19 databases, with the keyword 'clinical decision-making' AND 'terminal care' OR 'end-of-life care' and its analogues, including publications from 2017 to 2022. The study was conducted in accordance with the Preferred Reporting Items for Systematic Reviews and Meta-Analyses for Scoping Reviews. The search resulted in 3474 publications, where the presence of influencing factors in end-of-life decision-making for adults and the elderly was applied as a selection criterion. Fifty-four (54) of them were selected, which means 1.5% of all the results. Among the selected publications, 89 influencing factors were found, distributed in 54 (60.6%) factors related to the health team, 18 (20.2%) to patients, 10 (11.2%) related to family or surrogates and 7 (7.8%) factors related to the decision environment. In conclusion, we note that the decision-making in end-of-life care is complex, mainly because there is an interaction of different characters (health team, patient, family, or surrogates) with a plurality of influencing factors, associated with an environment of uncertainty and that result in a critical outcome, with a great repercussion for the end of life, making it imperative the recognition of these factors for more competent and safe decision-making.
临终关怀决策受多种因素影响,其中许多因素决策者并未识别出来。这些影响因素会改变这种情况下的重要决策,比如关于是否接受治疗支持的决策。本综述旨在通过范围综述梳理影响成年和老年患者临终关怀决策的因素。该综述在19个数据库中进行,关键词为“临床决策”以及“临终关怀”或“终末期护理”及其类似表述,纳入了2017年至2022年的出版物。本研究按照系统综述和范围综述的首选报告项目进行。检索结果有3474篇出版物,将其中是否存在影响成人和老年人临终决策的因素作为选择标准。从中选取了54篇,占所有结果的1.5%。在所选出版物中,共发现89个影响因素,分布如下:与医疗团队相关的因素54个(60.6%),与患者相关的因素18个(20.2%),与家庭或替代决策者相关的因素10个(11.2%),与决策环境相关的因素7个(7.8%)。总之,我们注意到临终关怀决策很复杂,主要是因为不同角色(医疗团队、患者、家庭或替代决策者)与多种影响因素相互作用,且处于不确定的环境中,最终导致关键结果,对生命末期产生重大影响,因此必须识别这些因素以做出更合理、安全的决策。