Meirte Jill, Tyack Zephanie
Department of Rehabilitation Sciences and Physiotherapy REVAKI-MOVANT, Faculty of Medicine and Health Sciences, University of Antwerp, 2610 Wilrijk, Belgium.
Oscare, Organisation for Burns, Scar After-Care and Research, 2170 Antwerp, Belgium.
Eur Burn J. 2022 Apr 5;3(2):290-308. doi: 10.3390/ebj3020025.
In burn scar rehabilitation, electronic patient-reported outcome measures (ePROMs) are increasingly being used in research and clinical settings as part of patient- and family-centred care. These measures can identify patients' needs and monitor the therapeutic progress of both adults and children. The feedback of information from ePROMs to clinicians treating patients with scarring and psychosocial issues may have therapeutic benefits. However, testing the effectiveness of ePROMs used in the routine clinical care of patients with burn scarring is in its infancy, and one of the greatest challenges remains the implementation of ePROMs in real-world clinical settings. The aim of this paper is to provide a guide for clinicians and researchers involved in burn scar rehabilitation to assist in implementing ePROMs in clinical settings. The guide outlines strategies, processes, and considerations for ePROM implementation and the accompanying resources. Two real-world case studies of ePROM implementation are presented in burn scar clinics in Belgium and Australia. Additionally, ten recommendations for the implementation of ePROMs are provided based on research evidence and the lessons learned by the authors. The information provided should pave the way forward for using and testing these ePROMs in research and practice.
在烧伤瘢痕康复中,电子患者报告结局测量(ePROMs)作为以患者和家庭为中心的护理的一部分,在研究和临床环境中越来越多地被使用。这些测量可以识别患者的需求,并监测成人和儿童的治疗进展。将ePROMs的信息反馈给治疗瘢痕和心理社会问题患者的临床医生可能具有治疗益处。然而,测试ePROMs在烧伤瘢痕患者常规临床护理中的有效性尚处于起步阶段,最大的挑战之一仍然是在实际临床环境中实施ePROMs。本文的目的是为参与烧伤瘢痕康复的临床医生和研究人员提供指导,以协助在临床环境中实施ePROMs。该指南概述了ePROMs实施的策略、流程和注意事项以及相关资源。比利时和澳大利亚的烧伤瘢痕诊所介绍了两个ePROMs实施的实际案例研究。此外,基于研究证据和作者的经验教训,提供了十条实施ePROMs的建议。所提供的信息应为在研究和实践中使用和测试这些ePROMs铺平道路。