Meirte Jill, Hellemans Nick, Van Daele Ulrike, Maertens Koen, Denteneer Lenie, Anthonissen Mieke, Moortgat Peter
Department of Rehabilitation Sciences and Physiotherapy REVAKI-MOVANT, Faculty of Medicine and Health Sciences, University of Antwerp, 2610 Wilrijk, Belgium.
Oscare, Organization for Burns, Scar After-Care and Research, 2170 Antwerp, Belgium.
Eur Burn J. 2024 Oct 11;5(4):321-334. doi: 10.3390/ebj5040030.
Patient-reported outcome measures (PROMs) are crucial within person-centered care. The use of electronic PROMs (ePROMs) is increasing and multiple advantages have been described. The Patient and Observer Scar Assessment Scale (POSAS) is a validated paper questionnaire to assess patient-reported scar quality in the burn and scar population. In burn and scar rehabilitation, quality of life questionnaires such as the Euroqol 5 Dimensions 5 level (EQ-5D-5L) and the Dermatology Life Quality Index (DLQI) allow us to measure physical and psychosocial impact. The goal of this research was to compare the equivalence of the electronic versions of the POSAS, the EQ-5D-5L, and the DLQI with their original paper counterparts. To ensure the psychometric properties of the electronic versions, we assessed the equivalence of scores, the differences in completion time, and patients' preferred mode and ease of use. We used a randomized crossover design using a within-subject comparison of the formats of the questionnaires. Participants aged over 18 with a scar were recruited from an outpatient after-care and research center for burns and scars in Antwerp, Belgium. The equivalence of the electronic questionnaires POSAS, EQ-5D-5L, and DLQI is assumed based on the findings of this study. Completion times were faster for all the electronic versions but only statistically different ( = 0.002) for the electronic version of the EQ-5D-5L. The number of missing answers could be reduced to 0. The electronic assessment was preferred in >75% of the cases and subjects found it easy to use, and a tool that could improve the quality of care. Our findings support the electronic delivery of POSAS, EQ-5D, and DLQI, within the burn and scar population.
患者报告结局测量(PROMs)在以患者为中心的医疗中至关重要。电子PROMs(ePROMs)的使用正在增加,并且已描述了其多种优势。患者和观察者瘢痕评估量表(POSAS)是一种经过验证的纸质问卷,用于评估烧伤和瘢痕人群中患者报告的瘢痕质量。在烧伤和瘢痕康复中,诸如欧洲五维健康量表5级(EQ-5D-5L)和皮肤病生活质量指数(DLQI)等生活质量问卷使我们能够测量身体和心理社会影响。本研究的目的是比较POSAS、EQ-5D-5L和DLQI电子版与原始纸质版的等效性。为确保电子版的心理测量特性,我们评估了分数的等效性、完成时间的差异以及患者偏好的模式和易用性。我们采用随机交叉设计,对问卷格式进行受试者内比较。从比利时安特卫普的一家烧伤和瘢痕门诊后续护理及研究中心招募了年龄在18岁以上有瘢痕的参与者。基于本研究的结果,假定电子问卷POSAS、EQ-5D-5L和DLQI具有等效性。所有电子版的完成时间都更快,但只有EQ-5D-5L电子版在统计学上有差异(P = 0.002)。缺失答案的数量可减少到零。在超过75%的病例中,患者更喜欢电子评估,并且受试者发现其易于使用,是一种可以提高护理质量的工具。我们的研究结果支持在烧伤和瘢痕人群中以电子方式发放POSAS、EQ-5D和DLQI。