电子患者报告结局测量的利弊：系统评价
Benefits and Disadvantages of Electronic Patient-reported Outcome Measures: Systematic Review.
作者信息
Meirte Jill, Hellemans Nick, Anthonissen Mieke, Denteneer Lenie, Maertens Koen, Moortgat Peter, Van Daele Ulrike
机构信息
Department of Rehabilitation Science and Physiotherapy, Faculty of Medicine and Health Sciences, University of Antwerp, Wilrijk, Belgium.
Department of Rehabilitation Sciences and Physiotherapy (REVAKI-MOVANT), Faculty of Medicine and Health Sciences, University of Antwerp, Antwerp, Belgium.
出版信息
JMIR Perioper Med. 2020 Apr 3;3(1):e15588. doi: 10.2196/15588.
BACKGROUND
Patient-reported outcome measures (PROMs) are important in clinical practice and research. The growth of electronic health technologies provides unprecedented opportunities to systematically collect information via PROMs.
OBJECTIVE
The aim of this study was to provide an objective and comprehensive overview of the benefits, barriers, and disadvantages of the digital collection of qualitative electronic patient-reported outcome measures (ePROMs).
METHODS
We performed a systematic review of articles retrieved from PubMED and Web of Science. The Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines were followed during all stages. The search strategy yielded a total of 2333 records, from which 32 met the predefined inclusion and exclusion criteria. The relevant ePROM-related information was extracted from each study.
RESULTS
Results were clustered as benefits and disadvantages. Reported benefits of ePROMs were greater patient preference and acceptability, lower costs, similar or faster completion time, higher data quality and response rates, and facilitated symptom management and patient-clinician communication. Tablets were the most used ePROM modality (14/32, 44%), and, as a platform, Web-based systems were used the most (26/32, 81%). Potential disadvantages of ePROMs include privacy protection, a possible large initial financial investment, and exclusion of certain populations or the "digital divide."
CONCLUSIONS
In conclusion, ePROMs offer many advantages over paper-based collection of patient-reported outcomes. Overall, ePROMs are preferred over paper-based methods, improve data quality, result in similar or faster completion time, decrease costs, and facilitate clinical decision making and symptom management. Disadvantages regarding ePROMs have been outlined, and suggestions are provided to overcome the barriers. We provide a path forward for researchers and clinicians interested in implementing ePROMs.
TRIAL REGISTRATION
PROSPERO CRD42018094795; https://www.crd.york.ac.uk/prospero/display_record.php?RecordID=94795.
背景
患者报告结局测量（PROMs）在临床实践和研究中很重要。电子健康技术的发展为通过PROMs系统收集信息提供了前所未有的机会。
目的
本研究的目的是对定性电子患者报告结局测量（ePROMs）数字收集的益处、障碍和缺点进行客观全面的概述。
方法
我们对从PubMed和Web of Science检索到的文章进行了系统综述。在所有阶段均遵循系统评价和Meta分析的首选报告项目（PRISMA）指南。检索策略共产生2333条记录，其中32条符合预定义的纳入和排除标准。从每项研究中提取了与ePROM相关的信息。
结果
结果分为益处和缺点。报告的ePROMs的益处包括患者更高的偏好性和可接受性、更低的成本、相似或更快的完成时间、更高的数据质量和回复率，以及便于症状管理和患者与临床医生的沟通。平板电脑是使用最多的ePROM方式（14/32，44%），作为一个平台，基于网络的系统使用最为广泛（26/32，81%）。ePROMs的潜在缺点包括隐私保护、可能需要大量的初始资金投入，以及排除某些人群或“数字鸿沟”问题。
结论
总之，与基于纸质的患者报告结局收集相比，ePROMs具有许多优势。总体而言，ePROMs优于基于纸质的方法，可提高数据质量，使完成时间相似或更快，降低成本，并便于临床决策和症状管理。已概述了ePROMs的缺点，并提供了克服障碍的建议。我们为有兴趣实施ePROMs的研究人员和临床医生提供了一条前进的道路。
试验注册
PROSPERO CRD42018094795；https://www.crd.york.ac.uk/prospero/display_record.php?RecordID=94795
Zotero 插件