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CARe烧伤量表成人版:确定患者报告结局指标(PROM)的反应性及最小重要差异(MID)值,以评估烧伤成人的生活质量。

The CARe Burn Scale-Adult Form: Identifying the Responsiveness and Minimal Important Difference (MID) Values of a Patient Reported Outcome Measure (PROM) to Assess Quality of Life for Adults with a Burn Injury.

作者信息

Griffiths Catrin, Tollow Philippa, Cox Danielle, White Paul, Pickles Timothy, Harcourt Diana

机构信息

Centre for Appearance Research (CAR), University of the West of England (UWE), Bristol BS16 1QY, UK.

Office for National Statistics, Newport NP10 8XG, UK.

出版信息

Eur Burn J. 2022 Mar 10;3(1):211-233. doi: 10.3390/ebj3010019.

Abstract

The CARe Burn Scales are a suite of burn-specific PROMs for adults, children, young people, and parents affected by burns. This study aimed to determine the responsiveness and minimal important difference (MID) values of the Adult Form for use in adult burn care and research. Participants were recruited by 11 UK Burn Services. They completed online or paper versions of the CARe Burn Scale -Adult Form and a set of appropriate comparison validated measures and anchor questions at baseline (T1, up to 4 weeks post-burn), 3 months (T2), and 6 months post-burn (T3). A total of 269 participants took part at baseline and 226 (84%) were retained at the 6-month follow-up. Spearman's correlation analysis and effect sizes based on Cohen's d thresholds were reported and MID values calculated. MID values were created for all subscales and ranged from 4-15. The CARe Burn Scale-Adult Form is responsive to change over time and can therefore be used to reliably inform the management of adults' burn injury treatment and recovery. It is freely available for clinical and research use.

摘要

CARe烧伤量表是一套专门针对受烧伤影响的成人、儿童、青少年及家长的烧伤患者报告结局量表。本研究旨在确定成人版在成人烧伤护理和研究中的反应度及最小重要差异(MID)值。参与者由英国11家烧伤服务机构招募。他们在烧伤后基线期(T1,烧伤后4周内)、3个月(T2)和6个月(T3)完成了CARe烧伤量表成人版的在线或纸质版本,以及一组经过验证的合适对照测量指标和锚定问题。共有269名参与者在基线期参与研究,226名(84%)在6个月随访时仍被纳入研究。报告了基于Cohen's d阈值的Spearman相关性分析和效应量,并计算了MID值。所有子量表均得出了MID值,范围为4至15。CARe烧伤量表成人版对随时间的变化有反应,因此可用于为成人烧伤损伤治疗和恢复的管理提供可靠信息。它可供临床和研究免费使用。

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