Griffiths Catrin, Pickles Timothy, Guest Ella, Harcourt Diana
Faculty of Medicine, Health and Life Science, Swansea University, Swansea SA2 8PP, UK.
Centre for Trials Research (CTR), Cardiff University, Cardiff CF14 4YS, UK.
Eur Burn J. 2025 May 7;6(2):22. doi: 10.3390/ebj6020022.
A PROM is a measure of patient needs and therapeutic progress. This paper outlines the validation of the CARe Burn Scale: Parent/Caregiver Form, a PROM that measures quality of life in parents/caregivers supporting a child with a burn injury. A literature review and interviews with sixteen parents and six burns health professionals informed the development of the PROM conceptual framework/draft form. Cognitive debriefing interviews with five parents and seven burns-specialist health professionals provided feedback to ascertain content validity, and two-hundred and four parents/caregivers took part in the field testing. Rasch measurement theory (RMT) analyses and internal consistency tests were conducted to create a shortened version and for psychometric validation. The final conceptual framework included eight domains/individual scales: . Seven scales had solutions from RMT analyses and passed internal consistency criteria. did not fit the Rasch model but was retained as a checklist based on theoretical insight. The CARe Burn Scale: Parent/Caregiver Form is the first and only burn-specific PROM that assesses parents' own health needs when caring for a child with a burn.
患者报告结局量表（PROM）是衡量患者需求和治疗进展的一种方式。本文概述了“关爱烧伤量表：家长/照顾者版”的验证过程，这是一种用于衡量照顾烧伤儿童的家长/照顾者生活质量的患者报告结局量表。通过文献综述以及对16位家长和6位烧伤健康专业人员的访谈，为该患者报告结局量表的概念框架/初稿提供了依据。对5位家长和7位烧伤专科健康专业人员进行的认知反馈访谈提供了反馈意见，以确定内容效度，204位家长/照顾者参与了现场测试。进行了拉施测量理论（RMT）分析和内部一致性测试，以创建一个缩短版并进行心理测量学验证。最终的概念框架包括八个领域/单个量表：……七个量表通过了拉施测量理论分析并符合内部一致性标准。……不符合拉施模型，但基于理论见解作为检查表保留。“关爱烧伤量表：家长/照顾者版”是首个也是唯一一个专门针对烧伤的患者报告结局量表，用于评估照顾烧伤儿童的家长自身的健康需求。
