Post Stephen G, Ross John Paul, Bonhag Rebecca, Lu Wei-Hsin
Center for Medical Humanities, Compassionate Care & Bioethics, Department of Family, Population and Preventive Medicine, Renaissance School of Medicine at SUNY Stony Brook, Stony Brook, NY, USA.
Institute for Studies of Religion, Baylor University, Waco, TX, USA.
J Alzheimers Dis. 2024 Dec;102(4):1197-1208. doi: 10.1177/13872877241297149. Epub 2024 Nov 27.
Despite the prevalence and challenge of Alzheimer's disease and related dementias, glimmers of hope arise during lucid moments. Caregivers, often burdened, play a crucial role. The study explored emotional responses to witnessed episodes of unexpected lucidity in deeply forgetful people, aiming to highlight the significance and varying reactions, especially among caregivers of this population.
The aim of this study was to elucidate how moments of unexpected lucidity are experienced by those who witness them, and to examine whether caregivers and non-caregivers, as well as different types of caregivers may have different emotional reactions to the episodes.
A probability-based sample representative of the United States adult population aged 40 and older with internet access was employed. 5944 respondents completed screening questions regarding whether they knew an individual with dementia and had witnessed unexpected lucidity. Close to 2000 individuals answered questions regarding their emotional reactions to witnessing unexpected lucidity, which we aimed to examine in more detail.
Both caregivers and non-caregivers showed a tendency towards positive emotions in response to lucid episodes, yet negative emotions were also mentioned. We observed group differences (caregivers versus non-caregivers, different caregiver types) in the emotional responses for some of the examined emotions.
Caregivers can find inspiration in these fleeting moments. The research aims to guide caregivers and enhance the understanding of the enduring self-identity of deeply forgetful people, promoting compassionate care and recognizing the significance of our shared humanity.
尽管阿尔茨海默病及相关痴呆症普遍存在且具有挑战性，但在清醒时刻仍有希望的曙光。护理人员往往负担沉重，但却发挥着关键作用。该研究探讨了目睹深度健忘者意外清醒事件时的情绪反应，旨在突出其重要性及不同反应，尤其是在这一人群的护理人员中。
本研究旨在阐明目睹意外清醒时刻的人是如何体验这些时刻的，并检验护理人员和非护理人员以及不同类型的护理人员对这些事件是否可能有不同的情绪反应。
采用了一个基于概率的样本，该样本代表了美国40岁及以上有互联网接入的成年人群。5944名受访者完成了关于他们是否认识患有痴呆症的人以及是否目睹过意外清醒的筛查问题。近2000人回答了关于他们目睹意外清醒时的情绪反应的问题，我们旨在对此进行更详细的研究。
护理人员和非护理人员在面对清醒事件时都表现出积极情绪的倾向，但也提到了消极情绪。我们在一些所考察的情绪的情感反应中观察到了群体差异（护理人员与非护理人员、不同类型的护理人员）。
护理人员可以从这些转瞬即逝的时刻中获得启发。该研究旨在指导护理人员，增进对深度健忘者持久自我认同的理解，促进富有同情心的护理，并认识到我们共同人性的重要性。
