Wagenaar Josephine, Mah Crystal, Bodell Fredrik, Reiss Irwin, Kleinsmann Maaike, Obermann-Borst Sylvia, Taal H Rob
Department of Neonatal and Pediatric Intensive Care, Sophia Childrens' Hospital, Erasmus Medical Center, Wytemaweg 80, Rotterdam, 3015CN, Netherlands, 31 107040704.
Department of Design Organization and Strategy, Faculty of Industrial Design Engineering, Delft University of Technology, Delft, Netherlands.
JMIR Pediatr Parent. 2024 Dec 2;7:e60610. doi: 10.2196/60610.
Neonatal intensive care unit admissions of newborns are emotional and stressful for parents, influencing their mental and physical well-being and resulting in high rates of psychological morbidities. Significant research has been undertaken to understand and quantify the burden of a newborn's medical journey on parents' well-being. Simultaneously, an increase has been observed in the development and implementation of telemedicine interventions, defined as the remote delivery of health care. Telemedicine is used as an overarching term for different technological interventions grouped as real-time audio-visual communication, remote patient monitoring, and asynchronous communication. Various telemedicine interventions have been proposed and developed but scarcely with the primary goal of improving parental well-being during their newborn's medical journey.
This study aims to identify telemedicine interventions with the potential to improve parents' well-being and to present the methods used to measure their experience.
A scoping review was conducted, including empirical studies evaluating telemedicine in neonatal care that either measured parental well-being or included parents in the evaluation. Abstract and title screening, full-text screening, and data extraction were performed by three researchers. Two researchers were needed to reach decisions on both the inclusion and extraction of articles.
The review included 50 out of 737 screened articles. Telemedicine interventions focused mainly on daily visits at the neonatal intensive care unit and discharge preparedness for parents. Surveys were the primary tool used for outcome measurement (36/50, 72%). Aspects of parents' well-being were evaluated in 62% (31/50) of studies. Telemedicine interventions developed to provide education and support showed a potential to improve self-efficacy and discharge preparedness and decrease anxiety and stress when they included a real-time telemedicine component.
This scoping review identified specific telemedicine interventions, such as real-time audio-visual communication and eHealth apps, that have the potential to improve parental well-being by enhancing self-efficacy and discharge preparedness, and reducing anxiety and stress. However, more insights are needed to understand how these interventions affect well-being. Parents should be included in future research in both the development and evaluation stages. It is important to not only measure parents' perceptions but also focus on the impact of a telemedicine intervention on their well-being.
新生儿重症监护病房收治新生儿对父母来说充满情感且压力巨大，会影响他们的身心健康，并导致较高的心理疾病发生率。已经开展了大量研究来了解并量化新生儿医疗过程给父母幸福感带来的负担。与此同时，人们观察到远程医疗干预的开发和应用有所增加，远程医疗被定义为远程提供医疗保健服务。远程医疗是一个统称，涵盖实时视听通信、远程患者监测和异步通信等不同技术干预措施。已经提出并开发了各种远程医疗干预措施，但几乎都不是以改善父母在新生儿医疗过程中的幸福感为主要目标。
本研究旨在确定有可能改善父母幸福感的远程医疗干预措施，并介绍用于衡量他们体验的方法。
进行了一项范围综述，纳入评估新生儿护理中远程医疗的实证研究，这些研究要么测量了父母的幸福感，要么在评估中纳入了父母。由三名研究人员进行摘要和标题筛选、全文筛选以及数据提取。需要两名研究人员就文章的纳入和提取做出决定。
该综述在737篇筛选文章中纳入了50篇。远程医疗干预主要集中在新生儿重症监护病房的日常探视以及为父母做好出院准备。调查是用于结果测量的主要工具（36/50，72%）。62%（31/50）的研究评估了父母幸福感的各个方面。为提供教育和支持而开发的远程医疗干预措施，当包含实时远程医疗组件时，显示出有潜力提高自我效能感和出院准备程度，并减轻焦虑和压力。
这项范围综述确定了特定的远程医疗干预措施，如实吋视听通信和电子健康应用程序，它们有可能通过提高自我效能感和出院准备程度以及减轻焦虑和压力来改善父母的幸福感。然而，需要更多的见解来了解这些干预措施如何影响幸福感。在未来的研究中，父母应参与开发和评估阶段。不仅要测量父母的看法，还要关注远程医疗干预对他们幸福感的影响，这一点很重要。
