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为患有疑似痴呆症的韩国老年人及其照顾者开展的痴呆症知识普及教育与引导:一项基于社区的随机对照多中心临床试验的基本原理、方法与设计

PLAN-Dementia literacy education and navigation for Korean elders with probable dementia and their caregivers: Rationale, methods, and design of a community-based, randomized, controlled, multi-site clinical trial.

作者信息

Han Hae-Ra, Perrin Nancy, Kwon Simona C, Joo Jinhui, Yun Ji-Young, Min Deborah, Lee Hochang Benjamin

机构信息

Johns Hopkins School of Nursing, Baltimore, MD, United States; Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, United States.

Johns Hopkins School of Nursing, Baltimore, MD, United States.

出版信息

Contemp Clin Trials. 2025 Jan;148:107771. doi: 10.1016/j.cct.2024.107771. Epub 2024 Nov 30.

Abstract

BACKGROUND

Linkage to medical services is key to early detection, diagnosis, and care for dementia. Yet, racial and ethnic minoritized older adults and their caregivers are particularly vulnerable to inequity in dementia care due to limited dementia literacy. Mobilizing community resources such as community health workers (CHWs) can benefit older patients and their caregivers who are challenged by linguistic barriers and low health literacy.

METHODS

Preparing for healthy aging through dementia Literacy education And Navigation (PLAN), is a CHW-led intervention program designed to promote linkage to medical services for dementia and caregiver outcomes in a multi-site clinical trial in the Greater Washington and New York metropolitan areas. This protocol describes the rationale, design, and methods of the PLAN trial.

CONCLUSION

We recruited 288 dyads of eligible Korean American older adults with undiagnosed dementia and their caregivers, totaling 576 participants. Data collection is ongoing. Findings from this trial will contribute to knowledge around identifying community-dwelling older adults with probable dementia with limited health resources as well as navigating appropriate medical evaluation and support.

CLINICALTRIALS

gov identifier: NCT03909347.

摘要

背景

与医疗服务建立联系是早期发现、诊断和治疗痴呆症的关键。然而,由于痴呆症知识有限,少数族裔老年人及其护理人员在痴呆症护理方面特别容易受到不公平对待。调动社区资源,如社区卫生工作者(CHW),可以使受到语言障碍和低健康素养挑战的老年患者及其护理人员受益。

方法

通过痴呆症知识教育与导航(PLAN)为健康老龄化做准备,是一项由社区卫生工作者主导的干预项目,旨在大华盛顿和纽约大都市地区的一项多地点临床试验中,促进痴呆症患者与医疗服务的联系以及护理人员的相关成果。本方案描述了PLAN试验的原理、设计和方法。

结论

我们招募了288对符合条件的患有未确诊痴呆症的韩裔美国老年人及其护理人员,共计576名参与者。数据收集正在进行中。该试验的结果将有助于了解如何识别健康资源有限的社区居住的可能患有痴呆症的老年人,以及如何进行适当的医学评估和提供支持。

临床试验

美国国立医学图书馆临床试验注册中心标识符:NCT03909347。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/83b1/11700777/60f2be8c8d66/nihms-2040523-f0001.jpg

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