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痴呆症患者家庭照顾者健康相关生活质量的现状及影响因素调查:一项横断面研究

A Survey on the Status Quo and Influencing Factors of Health-Related Quality of Life Among Family Caregivers of People with Dementia: A Cross-Sectional Study.

作者信息

Liu Hongli, Niu Tengfei, Chen Jiajia, Wu Zhenyu, Gong Taowu, Zhao Pengcheng, Zhu Yuhang, Zhang Li

机构信息

Department of Intensive Care Unit, Chongqing General Hospital, Chongqing University, Chongqing, 401147, People's Republic of China.

Nursing School of Zunyi Medical University, Zunyi, Guizhou, 563000, People's Republic of China.

出版信息

Int J Gen Med. 2024 Nov 29;17:5665-5679. doi: 10.2147/IJGM.S491327. eCollection 2024.

Abstract

BACKGROUND

This study examined the current state of health-related quality of life among family caregivers of elderly individuals with dementia, analyzing associated influencing factors to provide a foundation for enhancing their health-related quality of life and developing pertinent intervention strategies and measures.

METHODS

From September 2023 to February 2024, a convenient sampling method was used to investigate the status quo of Health-Related Quality of Life (HRQOL) among family caregivers for dementia patients, family caregivers for non-dementia patients, and people with no caregiving burdens in Sichuan, Chongqing and Guizhou in southwest China. The risk factors were analyzed by multiple regression.

RESULTS

A total of 678 questionnaires were distributed, and 630 valid questionnaires were obtained, resulting in a response rate of 92.92%. The study found that family caregivers for elderly individuals with dementia exhibited the lowest scores in both physical and mental health, followed by family caregivers for elderly individuals without dementia, while people with no caregiving burdens scored the highest. The multiple linear regression analysis demonstrated that age, chronic disease, the relationship between the family caregiver and the person being cared for were dependent of physiological health scores. While females, caregivers with secondary-education, and caregivers with a chronic disease showed poorer mental health scores.

CONCLUSION

We need to focus on the role that family caregivers for dementia patients play in the health and quality of life of older people with dementia. Therefore, we should pay more attention to the physical and mental health of family caregivers for dementia patients and ensure that this should be taken into consideration in policy-making, which will contribute to a better quality of life for theses caregivers.

摘要

背景

本研究调查了老年痴呆症患者家庭照料者的健康相关生活质量现状,分析相关影响因素,为提高其健康相关生活质量及制定针对性干预策略和措施提供依据。

方法

2023年9月至2024年2月,采用方便抽样法,对中国西南部四川、重庆和贵州的痴呆症患者家庭照料者、非痴呆症患者家庭照料者及无照料负担人群的健康相关生活质量现状进行调查。采用多元回归分析危险因素。

结果

共发放问卷678份,获得有效问卷630份,有效回收率为92.92%。研究发现,老年痴呆症患者的家庭照料者在生理和心理健康方面得分最低,其次是非痴呆症患者的家庭照料者,无照料负担的人群得分最高。多元线性回归分析表明,年龄、慢性病、家庭照料者与被照料者的关系与生理健康得分相关。而女性、具有中等教育程度的照料者和患有慢性病的照料者心理健康得分较差。

结论

我们需要关注痴呆症患者家庭照料者在老年痴呆症患者健康和生活质量方面所起的作用。因此,我们应更加关注痴呆症患者家庭照料者的身心健康,并确保在政策制定中予以考虑,这将有助于提高这些照料者的生活质量。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/38d5/11614578/c99323198c6d/IJGM-17-5665-g0001.jpg

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