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评估慢性病青少年过渡准备情况的工具:基于COSMIN测量属性的系统评价

Instruments to Assess Transition Readiness Among Adolescents With Chronic Disease: A COSMIN Systematic Review of Measurement Properties.

作者信息

Yi Ting, Hu Yiwen, Xia Lin, Zhang Yao, Chen Xuewei, Dong Chaoqun

机构信息

School of Nursing, Wenzhou Medical University, Wenzhou, China.

Cixi Biomedical Research Institute, Wenzhou Medical University, Zhejiang, China.

出版信息

Child Care Health Dev. 2025 Jan;51(1):e70017. doi: 10.1111/cch.70017.

DOI:10.1111/cch.70017
PMID:39629862
Abstract

BACKGROUND

Transition readiness is a key predictor of the success of the medical transition. There are numerous categories of assessment instruments for transition readiness in adolescents with chronic disease, but systematic integration and standardized evaluation of instruments are limited regarding measurement properties, complicating the selection of scientifically valid and reasonable instruments. This review aimed to critically appraise, compare, and summarize the transition readiness assessment instruments in adolescents with chronic diseases.

METHODS

A comprehensive search was conducted in 10 databases from their inception to September 3, 2023. The Consensus-based Standards for Selection of Health Measurement Instruments (COSMIN) systematic review guideline was used to evaluate the quality of the Patient-Reported Outcome Measures (PROMs) and to facilitate the recommendation of the most suitable measuring instruments.

RESULTS

The total number of retrieved articles was 1798, out of which 74 were selected for full-text evaluation. Finally, a total of 41 articles were included, involving 22 transition readiness assessment instruments. Nine of the assessment instruments were generalized assessment instruments, whereas 13 were for specific chronic diseases. Because of insufficient or uncertain content validity and moderate or low quality of evidence, the 22 assessment instruments were recommended by grade B.

CONCLUSIONS

This systematic review offers a comprehensive overview of the measurement characteristics of the transition readiness assessment instrument for adolescent patients with chronic illnesses, along with corresponding recommendations. The findings indicate that no instrument demonstrated superior performance over others. Consequently, future efforts should focus on developing additional high-quality instruments in accordance with COSMIN guidelines to evaluate transition readiness among this population precisely.

摘要

背景

过渡准备情况是医学过渡成功的关键预测指标。针对慢性病青少年的过渡准备情况,有众多类别的评估工具,但在测量特性方面,工具的系统整合和标准化评估有限,这使得选择科学有效且合理的工具变得复杂。本综述旨在严格评估、比较和总结慢性病青少年的过渡准备情况评估工具。

方法

对10个数据库从建库至2023年9月3日进行全面检索。基于共识的健康测量工具选择标准(COSMIN)系统评价指南用于评估患者报告结局测量指标(PROMs)的质量,并促进推荐最合适的测量工具。

结果

检索到的文章总数为1798篇,其中74篇被选作全文评估。最终,共纳入41篇文章,涉及22种过渡准备情况评估工具。其中9种评估工具为通用评估工具,13种针对特定慢性病。由于内容效度不足或不确定以及证据质量中等或较低,这22种评估工具被评为B级推荐。

结论

本系统评价全面概述了慢性病青少年患者过渡准备情况评估工具的测量特征,并给出了相应推荐。研究结果表明,没有一种工具表现出优于其他工具的性能。因此,未来应根据COSMIN指南,致力于开发更多高质量工具,以准确评估该人群的过渡准备情况。

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