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多发性硬化症患者工作的障碍:挪威对多发性硬化症工作困难问卷简版的文化调适与验证

Barriers for work in people with multiple sclerosis: a Norwegian cultural adaptation and validation of the short version of the multiple sclerosis work difficulties questionnaire.

作者信息

Normann Britt, Arntzen Ellen Christin, Honan Cynthia A

机构信息

Faculty of Nursing and Health Science, Nord University, Bodø, Norway.

Department of Physiotherapy, Nordland Hospital Trust, Bodø, Norway.

出版信息

Front Rehabil Sci. 2024 Nov 20;5:1404723. doi: 10.3389/fresc.2024.1404723. eCollection 2024.

DOI:10.3389/fresc.2024.1404723
PMID:39635507
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11614828/
Abstract

BACKGROUND AND PURPOSE

Multiple sclerosis (MS) is associated with high rates of unemployment, and barriers for work are essential to identify in the regular follow-up of these people. The current study aimed to culturally adapt and evaluate the psychometric properties of the Norwegian version of the Multiple Sclerosis Work Difficulties Questionnaire-23 (MSWDQ-23).

METHODS

Following backward and forward translation, the Norwegian version of the MSWDQ-23 (MSWDQ-23NV) was completed by 229 people with multiple sclerosis (MS). Validity was evaluated through confirmatory factor analysis and by associating scores with employment status, disability, and health-related quality of life outcome measures. Convergent validity was checked by correlating MSWDQ-23 scores with alternative study measures. Internal consistencies were examined by Cronbach's alfa.

RESULTS

A good fit for the data was demonstrated for the MSWDQ-23NV in confirmatory factor analysis, with excellent internal consistencies also demonstrated for the full scale and its subscales (physical barriers, psychological/cognitive barriers, external barriers). The MSWDQ-23NV subscales were related in the expected direction to health-related quality of life outcome measures. While higher scores on the physical barriers subscale was strongly associated with higher levels of disability and progressive MS types, higher scores on all subscales were associated with not working in the past year.

DISCUSSION

The Norwegian MSWDQ-23 is an internally consistent and valid instrument to measure perceived work difficulties in persons with all types of MS in a Norwegian-speaking population. The MSWDQ-23NV can be considered a useful tool for health care professionals to assess self-reported work difficulties in persons with MS. The Norwegian MSWDQ-23 scale should be examined for test-retest reliability and considered implemented in the regular follow up at the MS-outpatient clinics in Norway to support employment maintenance.

摘要

背景与目的

多发性硬化症(MS)与高失业率相关,在对这些患者的定期随访中,识别工作障碍至关重要。本研究旨在对挪威版多发性硬化症工作困难问卷23(MSWDQ - 23)进行文化适应性调整并评估其心理测量特性。

方法

经过回译和正向翻译后,229名多发性硬化症患者完成了挪威版MSWDQ - 23(MSWDQ - 23NV)。通过验证性因素分析以及将得分与就业状况、残疾情况和健康相关生活质量结局指标相关联来评估效度。通过将MSWDQ - 23得分与替代研究指标进行相关性分析来检验收敛效度。采用Cronbach's alfa检验内部一致性。

结果

在验证性因素分析中,MSWDQ - 23NV对数据拟合良好,全量表及其子量表(身体障碍、心理/认知障碍、外部障碍)也显示出优异的内部一致性。MSWDQ - 23NV子量表与健康相关生活质量结局指标的关联方向符合预期。虽然身体障碍子量表得分较高与残疾程度较高和进展型MS类型密切相关,但所有子量表得分较高均与过去一年未工作相关。

讨论

挪威版MSWDQ - 23是一种内部一致且有效的工具,可用于测量挪威语人群中各类MS患者感知到的工作困难。MSWDQ - 23NV可被视为医疗保健专业人员评估MS患者自我报告工作困难的有用工具。应检查挪威版MSWDQ - 23量表的重测信度,并考虑在挪威MS门诊诊所的定期随访中实施,以支持就业维持。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8ca3/11614828/f43fe3bd7767/fresc-05-1404723-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8ca3/11614828/f43fe3bd7767/fresc-05-1404723-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8ca3/11614828/f43fe3bd7767/fresc-05-1404723-g001.jpg

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本文引用的文献

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2
Measuring productivity loss in early relapsing-remitting multiple sclerosis.测量早期复发缓解型多发性硬化症的生产力损失。
Mult Scler Relat Disord. 2022 Feb;58:103398. doi: 10.1016/j.msard.2021.103398. Epub 2021 Nov 10.
3
A Greek Validation Study of the Multiple Sclerosis Work Difficulties Questionnaire-23.
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Healthcare (Basel). 2021 Jul 15;9(7):897. doi: 10.3390/healthcare9070897.
4
Relationship between Job Demands-Resources and turnover intention in chronic disease - The example of multiple sclerosis.工作要求-资源与慢性病离职意愿之间的关系——以多发性硬化症为例。
Stress Health. 2021 Dec;37(5):940-948. doi: 10.1002/smi.3054. Epub 2021 Apr 27.
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A Dutch validation study of the Multiple Sclerosis Work Difficulties Questionnaire in relapsing remitting multiple sclerosis.一项在复发缓解型多发性硬化症中对多发性硬化症工作困难问卷进行荷兰验证研究。
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6
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