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多发性硬化症工作困难问卷(MSWDQ)波斯语版本的心理测量学特性。

Psychometric Properties of the Persian Version of the Multiple Sclerosis Work Difficulties Questionnaire (MSWDQ) Questionnaire.

作者信息

Mirmosayyeb Omid, Shaygannejad Vahid, Najdaghi Soroush, Ghajarzadeh Mahsa

机构信息

Department of Neurology, Isfahan Neurosciences Research Center, Isfahan University of Medical Sciences.

Department of Neurology, Universal Council of Epidemiology (UCE), Universal Scientific Education and Research Network (USERN), Tehran University of Medical Sciences, Tehran, Iran.

出版信息

Int J Prev Med. 2022 Jun 24;13:94. doi: 10.4103/ijpvm.IJPVM_393_20. eCollection 2022.

DOI:10.4103/ijpvm.IJPVM_393_20
PMID:35958372
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9362744/
Abstract

BACKGROUND

Patients with multiple sclerosis (MS) suffer from a wide range of psychological and physical problems. Employment status is a crucial issue for patients with MS as unemployment while it is not completely evaluated in patients with MS.

OBJECTIVES

To assess psychometrical properties of the Persian version of the Multiple Sclerosis Work Difficulties Questionnaire (MSWDQ).

METHODS

One hundred and sixty patients were enrolled. They were asked to fill valid and reliable Persian version of the Fatigue Severity Scale (FSS), social support scale, and Short Form Health Survey (SF-36) and translated version of the MSWDQ questionnaire. Twenty cases filed the questionnaire two weeks later to assess reliability. The intra-class correlation coefficient (ICC), Cronbach's alpha, correlation coefficients were used.

RESULTS

Mean age and mean duration of the disease were 36.8 ± 9.1, and 7.5 ± 5.1, respectively. The Cronbach alpha for psychological/cognitive barriers subscale was 0.87, for Physical barriers was 0.83 and for external barriers was 0.86. The Cronbach α for the whole questionnaire was 0.89. There was a significant positive correlation between FSS and MSWDQ score, and a significant correlation with SF-36 and social support. The ICCs of all questions were acceptable.

CONCLUSIONS

Persian version of MSWDQ questionnaire is a valid and reliable instrument for evaluating work-related problems in patients with MS.

摘要

背景

多发性硬化症(MS)患者存在广泛的心理和身体问题。就业状况是MS患者的一个关键问题,因为失业问题在MS患者中尚未得到充分评估。

目的

评估波斯语版多发性硬化症工作困难问卷(MSWDQ)的心理测量学特性。

方法

招募了160名患者。要求他们填写有效且可靠的波斯语版疲劳严重程度量表(FSS)、社会支持量表、简短健康调查问卷(SF - 36)以及MSWDQ问卷的翻译版本。20例患者在两周后填写问卷以评估信度。使用组内相关系数(ICC)、克朗巴哈系数(Cronbach's alpha)、相关系数。

结果

平均年龄和平均病程分别为36.8 ± 9.1岁和7.5 ± 5.1年。心理/认知障碍子量表的克朗巴哈系数为0.87,身体障碍子量表为0.83,外部障碍子量表为0.86。整个问卷的克朗巴哈系数为0.89。FSS与MSWDQ得分之间存在显著正相关,与SF - 36和社会支持也存在显著相关性。所有问题的ICC均可接受。

结论

波斯语版MSWDQ问卷是评估MS患者工作相关问题的有效且可靠的工具。

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Evidence of an increased prevalence of multiple sclerosis: a population-based study of Tehran registry during 1999-2018.多发性硬化症患病率增加的证据:1999-2018 年德黑兰注册中心的一项基于人群的研究。
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Pain in Patients with Multiple Sclerosis.多发性硬化症患者的疼痛
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The multiple sclerosis work difficulties questionnaire: translation and cross-cultural adaptation to Turkish and assessment of validity and reliability.多发性硬化症工作困难问卷:土耳其语的翻译与跨文化调适,以及有效性和可靠性评估。
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Int J Prev Med. 2016 Jan 22;7:25. doi: 10.4103/2008-7802.174773. eCollection 2016.
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