Şimşek Bıradost Boran, Keskin Gülseren, Yıldız İsmail, Ekşi Ali
University of Ege University Institute of Health Sciences, İzmir, Turkey.
Ege University Atatürk Vocational School of Health Services, Izmir, Turkey.
J Autism Dev Disord. 2024 Dec 6. doi: 10.1007/s10803-024-06673-z.
Earthquakes have serious psychosocial and emotional effects on children diagnosed with autism spectrum disorder (ASD) and their parents. The limited number of studies investigating the earthquake experience of children with ASD and their parents indicates a need to improve existing research in this area. The aim of this study was to assess parents' experiences with their children after the earthquake and their reactions to the earthquake.
This study was subjected to analysis via both phenomenological and thematic analysis methods on the basis of the results of semistructured interviews with the parents of 21 children with ASD who were receiving their education in special education and rehabilitation centers.
Two principal themes were discerned: the first theme, entitled Post-Eartquake Responses in Children and the second, entitled Parents' Earthquake Experiences and Coping Strategies, were identified. Earthquakes had a significant effect on children's bodily, behavioural and emotional responses. In addition, parents were compelled to devise a range of coping strategies to manage their emotional responses to the earthquake and to facilitate their children's access to constrained educational opportunities and adapt to evolving social dynamics.
In disaster situations, access to multidisciplinary support programs for children diagnosed with ASD and their families is highly important. These programs, designed through collaboration across various fields of expertise, can offer comprehensive solutions to the emotional, social, and physical challenges faced by children and their families.
地震对被诊断患有自闭症谱系障碍(ASD)的儿童及其父母会产生严重的心理社会和情感影响。对患有ASD的儿童及其父母的地震经历进行调查的研究数量有限,这表明需要改进该领域现有的研究。本研究的目的是评估地震后父母与孩子的经历以及他们对地震的反应。
本研究基于对在特殊教育和康复中心接受教育的21名患有ASD儿童的父母进行的半结构化访谈结果,采用现象学和主题分析方法进行分析。
识别出两个主要主题:第一个主题名为“儿童的震后反应”,第二个主题名为“父母的地震经历及应对策略”。地震对儿童的身体、行为和情感反应产生了重大影响。此外,父母不得不制定一系列应对策略,以管理他们对地震的情绪反应,并帮助孩子获得有限的教育机会,适应不断变化的社会动态。
在灾难情况下,为被诊断患有ASD的儿童及其家庭提供多学科支持项目非常重要。这些通过跨多个专业领域合作设计的项目,可以为儿童及其家庭面临的情感、社会和身体挑战提供全面的解决方案。