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晚期癌症患者的死亡准备模型:一项扎根理论研究。

A Model of Death Preparedness in Patients With Advanced Cancer: A Grounded Theory Study.

作者信息

Zhang Xi, Zeng Tieying, Zhao Meizhen, Su Yisui, Liu Xiaohong, Chen Ye

机构信息

Department of Nursing, Tongji Hospital, Tongji Medical College, Huazhong University of Science and Technology, Wuhan, China.

School of Nursing, Tongji Medical College, Huazhong University of Science and Technology, Wuhan, China.

出版信息

J Adv Nurs. 2024 Dec 8. doi: 10.1111/jan.16669.

DOI:10.1111/jan.16669
PMID:39648363
Abstract

BACKGROUND

Death preparedness in patients with advanced cancer is an important prerequisite for improving the quality of death. However, there are insufficient studies on death preparedness in patients with advanced cancer, and the level of death preparedness needs to be further improved.

AIM

To develop a model of death preparedness in patients with advanced cancer.

METHODS

A qualitative approach with grounded theory was used. Data were collected between February 2024 and July 2024 in the oncology wards of the two general hospitals in Wuhan. We recruited 12 patients, 11 family members, 16 nurses and 4 doctors for semistructured interviews. Data analysis included open coding, axial coding and selective coding. The study is reported using the COREQ checklist.

RESULTS

Death preparedness in patients with advanced cancer is a spiralling process whose core components include death awareness, emotional response, hospice programme and reflexive care, and multiple personal, interpersonal and social factors influence it.

CONCLUSION

A model of death preparedness in advanced cancer patients was constructed through rooted theory, revealing its formation and change process. This model deepens the understanding of death preparedness and helps healthcare providers identify patients' preparedness status in advance to provide more targeted support and care. This personalised care enhances patients' quality of life and reduces the psychological burden on them and their families, achieving more comprehensive and humanised end-of-life care.

IMPACT

To better understand patients' death preparedness, healthcare providers should focus on patients' cognitive, emotional, behavioural and social needs in the process of death preparation from a multifactorial perspective, and provide targeted support and assistance. No Patient or Public Contributions were included in this paper.

摘要

背景

晚期癌症患者的死亡准备是提高死亡质量的重要前提。然而,关于晚期癌症患者死亡准备的研究不足,死亡准备水平有待进一步提高。

目的

构建晚期癌症患者死亡准备模型。

方法

采用扎根理论的质性研究方法。于2024年2月至2024年7月在武汉两家综合医院的肿瘤科病房收集数据。我们招募了12名患者、11名家属、16名护士和4名医生进行半结构式访谈。数据分析包括开放编码、主轴编码和选择编码。本研究使用COREQ清单进行报告。

结果

晚期癌症患者的死亡准备是一个螺旋式过程,其核心要素包括死亡意识、情绪反应、临终关怀计划和反思性护理,并且受到多种个人、人际和社会因素的影响。

结论

通过扎根理论构建了晚期癌症患者死亡准备模型,揭示了其形成和变化过程。该模型加深了对死亡准备的理解,有助于医护人员提前识别患者的准备状态,以提供更有针对性的支持和护理。这种个性化护理提高了患者的生活质量,减轻了患者及其家属的心理负担,实现了更全面、人性化的临终关怀。

影响

为了更好地理解患者的死亡准备情况,医护人员应从多因素角度关注患者在死亡准备过程中的认知、情感、行为和社会需求,并提供有针对性的支持和帮助。本文未纳入患者或公众的贡献。

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J Natl Cancer Cent. 2024 Jun 22;4(3):203-213. doi: 10.1016/j.jncc.2024.06.005. eCollection 2024 Sep.
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Death Preparedness: Development and Initial Validation of the Advance Planning Preparedness Scale.死亡准备:预先规划准备量表的编制与初步验证
Omega (Westport). 2023 Nov 3:302228231212998. doi: 10.1177/00302228231212998.
3
Cancer patients' expectations of advance care planning: A typological content analysis of qualitative interviews.
癌症患者对预先护理计划的期望:定性访谈的类型学内容分析
Psychooncology. 2023 Dec;32(12):1867-1875. doi: 10.1002/pon.6234. Epub 2023 Oct 31.
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Factors associated with cancer patients' distinct death-preparedness states.与癌症患者不同死亡准备状态相关的因素。
Psychooncology. 2023 Jul;32(7):1048-1056. doi: 10.1002/pon.6146. Epub 2023 Apr 27.
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Current cancer burden in China: epidemiology, etiology, and prevention.当前中国的癌症负担:流行病学、病因学和预防。
Cancer Biol Med. 2022 Aug 30;19(8):1121-38. doi: 10.20892/j.issn.2095-3941.2022.0231.
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Impact of advance care planning and end-of-life conversations on patients with cancer: An integrative review of literature.预先护理计划和临终谈话对癌症患者的影响:文献综合综述
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Prognostic disclosure in cancer care: a systematic literature review.癌症护理中的预后信息披露:一项系统文献综述
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Sufficient Death Preparedness Correlates to Better Mental Health, Quality of Life, and EOL Care.充分的死亡准备与更好的心理健康、生活质量和临终关怀相关。
J Pain Symptom Manage. 2022 Jun;63(6):988-996. doi: 10.1016/j.jpainsymman.2022.02.014. Epub 2022 Feb 19.
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