Bell Katie, Summers S J, Moffitt Jenna, Hill Geoff
Tees, Esk and Wear Valleys NHS Foundation Trust, Middlesbrough, UK.
Teesside University, Middlesbrough, UK.
Qual Health Res. 2025 Oct;35(12):1354-1364. doi: 10.1177/10497323241304641. Epub 2024 Dec 9.
Guillain-Barré syndrome is a rare neurological condition. Research has increased our understanding of the etiology, prognosis, and effective medical treatment of the illness. There is a lack of understanding regarding the psychological effects and what could help patients. This study aimed to begin to address this using constructivist grounded theory. Eleven interviews were conducted with participants who had received a diagnosis of Guillain-Barré syndrome in the preceding 4 years. The model that emerged identified two key processes: "Loss, determination, and adjustment" and "The unknown." "Receiving support," "Obtaining knowledge," and "Experiencing hope" assist in navigating these psychological effects. The findings emphasize the all-encompassing effects of Guillain-Barré syndrome, illustrating the need for rehabilitation professionals to alleviate uncertainty and foster practices that could facilitate patients' navigation through the illness. Recommendations for further research are provided.
格林-巴利综合征是一种罕见的神经系统疾病。研究增进了我们对该疾病病因、预后及有效药物治疗的理解。但对于其心理影响以及如何帮助患者，人们还缺乏认识。本研究旨在运用建构主义扎根理论来着手解决这一问题。对11名在过去4年中被诊断为格林-巴利综合征的参与者进行了访谈。得出的模型确定了两个关键过程：“失去、决心和调整”以及“未知”。“获得支持”“获取知识”和“体验希望”有助于应对这些心理影响。研究结果强调了格林-巴利综合征的全面影响，表明康复专业人员需要减少不确定性，并培养有助于患者应对疾病的做法。还提供了进一步研究的建议。
