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德国早期痴呆症患者使用认知与身体激活应用程序的需求和体验:定性研究

The Needs and Experiences of People With Early-Stage Dementia Using an Application for Cognitive and Physical Activation in Germany: Qualitative Study.

作者信息

Klein Melina, von Bosse Alexa, Kunze Christophe

机构信息

Furtwangen University, Furtwangen, Germany.

Care & Technology Lab, Furtwangen University, Robert-Gerwig-Platz 1, Furtwangen, Germany.

出版信息

JMIR Aging. 2024 Dec 10;7:e62689. doi: 10.2196/62689.

Abstract

BACKGROUND

The demand for support among people with dementia is increasing, while caregiving capacity is declining. As the trend of aging at home continues, technologies can help maintain the autonomy of people with dementia, enabling them to live independently for as long as possible. Furthermore, digital applications can have numerous positive biopsychosocial effects on the health of people with dementia, enhancing their physical, cognitive, and social functioning.

OBJECTIVE

This study aims to investigate the needs and experiences of people with dementia regarding a prototype tablet-based application designed to promote cognitive and physical activity.

METHODS

We conducted a methodical triangulation by combining semistructured interviews with people with dementia and external overt participant observation while testing a tablet-based application. A qualitative content analysis, as outlined by Kuckartz, was used to analyze the data.

RESULTS

Participants demonstrated varying levels of ability and prior experience with technology. While most were initially hesitant to use the tablet independently, they were more willing to try it after receiving encouragement. Some individuals required more assistance than others, indicating the need for individualized adjustments. Personal relevance to the content appeared to be crucial for cognitive tasks, as it helped to minimize overload for people with dementia. The participants appreciated social interaction with researchers and direct communication. Therefore, it is important to consider the role of personal support when developing and implementing technology.

CONCLUSIONS

The successful implementation and use of technology requires acceptance and an effective interaction between people with dementia, technology, and caregivers or caring relatives providing personal support. The acceptance of the application was found to be less influenced by the types and presentation of tasks and more by content relevance and social interaction. Ideally, one-on-one support will be provided during use, though this requires additional time and financial resources, which are often limited in caregiving settings.

摘要

背景

痴呆症患者对支持的需求不断增加,而护理能力却在下降。随着居家养老趋势的持续,技术有助于维持痴呆症患者的自主性,使他们能够尽可能长时间地独立生活。此外,数字应用程序对痴呆症患者的健康可产生众多积极的生物心理社会影响,增强他们的身体、认知和社交功能。

目的

本研究旨在调查痴呆症患者对于一款旨在促进认知和身体活动的基于平板电脑的应用程序原型的需求和体验。

方法

我们在测试一款基于平板电脑的应用程序时,通过将对痴呆症患者的半结构化访谈与外部公开参与观察相结合,进行了方法学三角验证。采用库卡茨概述的定性内容分析法对数据进行分析。

结果

参与者展示出不同水平的技术能力和先前经验。虽然大多数人最初对独立使用平板电脑犹豫不决,但在得到鼓励后更愿意尝试。一些人比其他人需要更多帮助,这表明需要进行个性化调整。内容的个人相关性对于认知任务似乎至关重要,因为它有助于将痴呆症患者的负担降至最低。参与者重视与研究人员的社交互动和直接交流。因此,在开发和实施技术时考虑个人支持的作用很重要。

结论

技术的成功实施和使用需要痴呆症患者、技术以及提供个人支持的护理人员或亲属之间的接受和有效互动。发现应用程序的接受度受任务类型和呈现方式的影响较小,而受内容相关性和社交互动的影响较大。理想情况下,使用过程中将提供一对一的支持,不过这需要额外的时间和财力,而在护理环境中这些往往是有限的。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/f59a/11651421/c3e1bfc9b4d2/aging-v7-e62689-g001.jpg

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