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为时已晚,但转变卫生系统仍不算太晚:一个用于为全球问题寻求本地解决方案的全球数字公民科学观测站。

It's late, but not too late to transform health systems: a global digital citizen science observatory for local solutions to global problems.

作者信息

Katapally Tarun Reddy

机构信息

DEPtH Lab, School of Health Studies, Faculty of Health Sciences, Western University, London, ON, Canada.

Faculty of Health Sciences, Hirabai Cowasji Jehangir Medical Research Institute, Pune, India.

出版信息

Front Digit Health. 2024 Nov 27;6:1399992. doi: 10.3389/fdgth.2024.1399992. eCollection 2024.

Abstract

A key challenge in monitoring, managing, and mitigating global health crises is the need to coordinate clinical decision-making with systems outside of healthcare. In the 21st century, human engagement with Internet-connected ubiquitous devices generates an enormous amount of big data, which can be used to address complex, intersectoral problems via participatory epidemiology and mHealth approaches that can be operationalized with digital citizen science. These big data - which traditionally exist outside of health systems - are underutilized even though their usage can have significant implications for prediction and prevention of communicable and non-communicable diseases. To address critical challenges and gaps in big data utilization across sectors, a Digital Citizen Science Observatory (DiScO) is being developed by the Digital Epidemiology and Population Health Laboratory by scaling up existing digital health infrastructure. DiScO's development is informed by the Smart Framework, which leverages ubiquitous devices for ethical surveillance. The Observatory will be operationalized by implementing a rapidly adaptable, replicable, and scalable progressive web application that repurposes jurisdiction-specific cloud infrastructure to address crises across jurisdictions. The Observatory is designed to be highly adaptable for both rapid data collection as well as rapid responses to emerging and existing crises. Data sovereignty and decentralization of technology are core aspects of the observatory, where citizens can own the data they generate, and researchers and decision-makers can re-purpose digital health infrastructure. The ultimate aim of DiScO is to transform health systems by breaking existing jurisdictional silos in addressing global health crises.

摘要

监测、管理和缓解全球健康危机的一个关键挑战是需要将临床决策与医疗保健以外的系统进行协调。在21世纪,人们与联网的无处不在的设备互动产生了大量大数据,这些大数据可通过参与式流行病学和移动健康方法来解决复杂的跨部门问题,而这些方法可通过数字公民科学来实施。这些传统上存在于卫生系统之外的大数据未得到充分利用,尽管其使用对传染病和非传染病的预测和预防可能具有重大意义。为了应对各部门大数据利用方面的关键挑战和差距,数字流行病学与人口健康实验室正在通过扩大现有的数字健康基础设施来开发一个数字公民科学观测站(DiScO)。DiScO的开发以智能框架为指导,该框架利用无处不在的设备进行道德监测。该观测站将通过实施一个快速适应、可复制和可扩展的渐进式网络应用程序来运作,该应用程序重新利用特定辖区的云基础设施来应对跨辖区的危机。该观测站旨在高度适应快速数据收集以及对新出现和现有危机的快速反应。数据主权和技术去中心化是观测站的核心方面,公民可以拥有他们生成的数据,研究人员和决策者可以重新利用数字健康基础设施。DiScO的最终目标是通过打破现有辖区孤岛来应对全球健康危机,从而改变卫生系统。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/18ad/11632134/ea28e63d5792/fdgth-06-1399992-g001.jpg

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