Naccarella Lucio, Rawstorn Jonathan Charles, Kelly Jaimon, Quested Eleanor, Jenkinson Stuart, Kwasnicka Dominika
Melbourne School of Population and Global Health, The University of Melbourne, Melbourne, Australia.
Institute for Physical Activity and Nutrition, School of Exercise and Nutrition Sciences, Deakin University, Geelong, Australia.
J Med Internet Res. 2024 Dec 10;26:e50491. doi: 10.2196/50491.
Citizen science is a community-based participatory research approach with an emphasis on addressing health disparities that is increasingly advocated by the community, researchers, and research funders. Digitally enabled methods can extend the potential of citizen science by enabling citizens to engage in real-time research processes, such as data collection, information sharing, interpreting, acting on data, and informing decision-making. However, the power of any citizen science lies in promoting health equity by providing equal opportunity for citizen engagement. Without appropriate attention to recognize and address equity, digital enablement of citizen science may exacerbate rather than ameliorate health inequalities. In this Viewpoint, we draw on our digital health research experience and perspectives to outline the practice of citizen science in the context of digital health-how it is operationalized, key advocated principles, and challenges. We also discuss citizen science in relation to health equity and implementation science, including emphasizing the importance of integrating health equity principles and frameworks, health equity implementation determinants, and digital determinants of health. We demonstrate how equity could be achieved by providing a working example in the context of a digitally enabled approach to improving social, physical, and mental well-being among people with disability and caregivers.
公民科学是一种基于社区的参与式研究方法,强调解决健康差距问题,越来越受到社区、研究人员和研究资助者的倡导。数字化方法可以通过让公民参与实时研究过程来扩展公民科学的潜力,例如数据收集、信息共享、解读、根据数据采取行动以及为决策提供信息。然而,任何公民科学的力量都在于通过为公民参与提供平等机会来促进健康公平。如果不适当关注识别和解决公平问题,公民科学的数字化可能会加剧而不是改善健康不平等。在这篇观点文章中,我们借鉴我们的数字健康研究经验和观点,概述数字健康背景下公民科学的实践——它是如何运作的、关键倡导原则以及挑战。我们还讨论了与健康公平和实施科学相关的公民科学,包括强调整合健康公平原则和框架、健康公平实施决定因素以及健康数字决定因素的重要性。我们通过在一种数字化方法的背景下提供一个改善残疾人和照顾者的社会、身体和心理健康的实际例子,展示了如何实现公平。