Bartoli Davide, Lombardi Eleonora, Trotta Francesca, Macripo Sabrina, Pucciarelli Gianluca, Francesco Petrosino
Department of Biomedicine and Prevention, University of Rome tor Vergata, Rome, Italy.
Department of Medicine and Psychology, Sapienza University of Rome, Rome, Italy.
J Clin Nurs. 2025 Feb;34(2):625-661. doi: 10.1111/jocn.17591. Epub 2024 Dec 12.
Stroke represents the second leading cause of death worldwide after cardiovascular disease and the first cause of disability in adults. Only 25% of stroke survivors fully recover, 75% survive with some form of disability, and half of them lose self-sufficiency, negatively impacting their quality of life. This study aims to understand the experiences of stroke survivors and caregivers of training needs and support during the transitional care phase from hospital to home; it also investigates the experience of health care professionals (HCPs) of providing support and training to the dyad during this phase.
Meta-synthesis was conducted following a critical-interpretative approach. The SPIDER method was used for sample selection, and the PRISMA research question was adopted for article selection. The search for studies on CINAHL, Pubmed, Scopus, ERIC, PsycInfo and OVID was conducted until August 2024.
Of the 1123 articles found, 32 met the inclusion criteria and were included in the meta-synthesis. Text analysis revealed two main thematic areas: (1) the training need is a new awareness in the transition of care from hospital to home and (2) moulding oneself to new life. The first theme had six subthemes: need for information and training, uncertainty, involvement, evaluation of training needs, individual discharge planning and physical-psychological problems. The second theme included three subthemes: different role perception, support after discharge and adaptation to change.
Knowing the training and support needs in the stroke survivor caregiver dyad guides HCPs to structure tailored discharge plans. Multi-method and multidisciplinary training and support interventions such as health coaching, weekend passes and early supported discharge are satisfactory outcomes for the triad involved in the transition of care, as continuous feedback on the needs of the new reality at home fortifies the relationship between the dyad and HCPs. A transitional care pathway based on the dynamic needs of the triad can improve the quality of care in the community.
中风是全球仅次于心血管疾病的第二大死因,也是成年人残疾的首要原因。只有25%的中风幸存者能完全康复,75%的幸存者会伴有某种形式的残疾,其中一半人失去自理能力,对他们的生活质量产生负面影响。本研究旨在了解中风幸存者及其照顾者在从医院到家庭的过渡护理阶段的培训需求和支持经历;同时调查医护人员在此阶段为这二者提供支持和培训的经验。
采用批判性解释方法进行元综合分析。使用SPIDER方法进行样本选择,并采用PRISMA研究问题进行文章选择。在CINAHL、Pubmed、Scopus、ERIC、PsycInfo和OVID上搜索相关研究,直至2024年8月。
在检索到的1123篇文章中,32篇符合纳入标准并被纳入元综合分析。文本分析揭示了两个主要主题领域:(1)培训需求是从医院到家庭护理过渡中的新认识;(2)适应新生活。第一个主题有六个子主题:信息和培训需求、不确定性、参与度、培训需求评估、个性化出院计划以及身体 - 心理问题。第二个主题包括三个子主题:不同的角色认知、出院后的支持以及适应变化。
了解中风幸存者 - 照顾者二元组的培训和支持需求可指导医护人员制定量身定制的出院计划。多方法和多学科的培训及支持干预措施,如健康指导、周末出院许可和早期支持出院,对于参与护理过渡的三元组来说是令人满意的结果,因为对家庭新现实需求的持续反馈加强了二元组与医护人员之间的关系。基于三元组动态需求的过渡护理途径可提高社区护理质量。