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视频教育与远程支持项目对过渡期护理中照顾者 - 中风幸存者二元组的影响(D-STEPS:中风护理中通过远程医疗和教育项目提供二元支持):一项纵向研究方案

The Impact of a Video-Educational and Tele-Supporting Program on the Caregiver-Stroke Survivor Dyad During Transitional Care (D-STEPS: Dyadic Support Through Tele-Health and Educational Programs in Stroke Care): A Longitudinal Study Protocol.

作者信息

Bartoli Davide, Petrosino Francesco, Nuccio Emanuela, Damico Vincenzo, Rago Cristiana, Veronese Mayra, Virgolesi Michele, Alvaro Rosaria, Vellone Ercole, Lombardi Eleonora, Pucciarelli Gianluca

机构信息

Departmental Faculty of Medicine, Saint Camillus International University of Health and Medical Sciences, 00131 Rome, Italy.

Department of Biomedicine and Prevention, University of Rome Tor Vergata, 00133 Rome, Italy.

出版信息

Healthcare (Basel). 2025 Aug 18;13(16):2039. doi: 10.3390/healthcare13162039.

Abstract

: Stroke is a leading cause of long-term disability and substantially affects the quality of life (QoL) of both survivors and their caregivers. The transition from hospital to home is a vulnerable period characterized by discontinuity of care and insufficient caregiver support. Dyadic interventions-targeting both the survivor and caregiver-have shown promise in improving recovery outcomes. This protocol outlines a mixed-methods study to evaluate the impact of a video-based training intervention on the stroke survivor-caregiver dyad during the first year post-discharge. : A mixed-methods design based on the TIDieR checklist will be implemented. Stroke survivors and their caregivers will be recruited from stroke units and rehabilitation hospitals across Italy prior to discharge. Approximately 150 dyads will receive a video training intervention followed by nurse-led transitional care support. Assessments will occur at baseline (T0) and at 1 (T1), 3 (T2), 6 (T3), and 12 months (T4) post-discharge. Outcomes will include physical functioning, disability, anxiety, depression, caregiver preparedness, burden, social support, sleep quality, and both generic and stroke-specific QoL. The study is supported by a grant from the Centre of Excellence for Nursing Scholarship, Rome, July 2024. : Integrating caregivers into transitional care through structured training and support is essential for improving dyadic outcomes after stroke. Strengthening knowledge and preparedness in both survivors and caregivers enhances recovery, reduces caregiver burden, and may alleviate healthcare system costs associated with poor post-discharge outcomes.

摘要

中风是导致长期残疾的主要原因,严重影响幸存者及其照顾者的生活质量(QoL)。从医院到家庭的过渡是一个脆弱时期,其特点是护理不连续和照顾者支持不足。针对幸存者和照顾者双方的二元干预措施在改善康复结果方面显示出了前景。本方案概述了一项混合方法研究,以评估基于视频的培训干预对出院后第一年中风幸存者-照顾者二元组的影响。

将实施基于TIDieR清单的混合方法设计。中风幸存者及其照顾者将在出院前从意大利各地的中风病房和康复医院招募。大约150个二元组将接受视频培训干预,随后接受护士主导的过渡性护理支持。评估将在基线(T0)以及出院后1个月(T1)、3个月(T2)、6个月(T3)和12个月(T4)时进行。结果将包括身体功能、残疾、焦虑、抑郁、照顾者准备情况、负担、社会支持、睡眠质量以及一般和中风特异性生活质量。该研究得到了罗马护理奖学金卓越中心2024年7月的资助。

通过结构化培训和支持将照顾者纳入过渡性护理对于改善中风后的二元结果至关重要。增强幸存者和照顾者双方的知识和准备情况可促进康复、减轻照顾者负担,并可能减轻与出院后不良结果相关的医疗系统成本。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d956/12385329/f75709ff079d/healthcare-13-02039-g001.jpg

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