Vargu Migena, Dedej Sabina, Vasili Ermira
Dermatology Service, University Hospital Center "Mother Teresa", Tirana, Albania.
Dermatol Reports. 2024 Feb 2;16(4):9879. doi: 10.4081/dr.2024.9879. eCollection 2024 Nov 21.
The COVID-19 pandemic has caused a global health crisis, presenting novel challenges while worsening preexisting difficulties for individuals with rare diseases. Internationally, they have experienced disruptions in their medical care, with a lack of access to essential treatments and diagnostics. We focused on the specific challenges faced by individuals living with rare skin diseases in Albania, a country with limited healthcare infrastructure. The pandemic led to a significant decrease in our service, resulting in an 87.1% reduction in patients hospitalized in 2020 compared to 2019. Notable gender and age disparities were observed in hospitalizations, with a shift towards more male patients and a decline in younger age groups seeking medical attention. Innovative approaches such as telemedicine helped maintain care for this vulnerable patient population. Further research is required to understand the long-term impacts of the pandemic on individuals with rare skin diseases and develop strategies for their care in future emergencies.
新冠疫情引发了一场全球健康危机,带来了新的挑战,同时也加剧了罕见病患者原有的困境。在国际上,他们的医疗护理受到干扰,无法获得基本的治疗和诊断。我们关注了阿尔巴尼亚患有罕见皮肤病的患者所面临的具体挑战,该国的医疗基础设施有限。疫情导致我们的服务大幅减少,2020年住院患者比2019年减少了87.1%。住院情况存在显著的性别和年龄差异,男性患者增多,寻求医疗护理的年轻人群减少。远程医疗等创新方法有助于为这一弱势群体提供护理。需要进一步研究以了解疫情对罕见皮肤病患者的长期影响,并制定在未来紧急情况下为他们提供护理的策略。