Alter Isaac L, Chadwick Keith A, Andreadis Katerina, Coleman Rachel, Pitti Mary, Ezell Jerel M, Rameau Anaïs
Sean Parker Institute for the Voice, Department of Otolaryngology-Head and Neck Surgery Weill Cornell Medical College New York New York USA.
Division of Otolaryngology-Head & Neck Surgery, Department of Surgery Stony Brook University Stony Brook New York USA.
Laryngoscope Investig Otolaryngol. 2024 Dec 14;9(6):e70043. doi: 10.1002/lio2.70043. eCollection 2024 Dec.
To date, there has yet to be a rigorous exploration of voice and communication modification training (VCMT) among transgender and gender-nonconforming (TGNC) individuals using digital technology. We sought to evaluate and describe the iterative process of app development using a community-based approach.
An interprofessional team of voice health care professionals, application developers, designers, and TGNC community members was assembled to conceive the functionality, content, and design of a mobile app to support VCMT for TGNC people. Six TGNC individuals, identified primarily by word of mouth, joined the development team as a Community Advisory Board (CAB). The CAB provided input on app content development, design choices, and user experience, with collaboration across disciplines and integration of TGNC community members throughout app development; the applicability of CBPR principles was evaluated throughout the development process.
Iterative cycles of content creation and feedback produced multiple substantial changes during the app's development, including added functionality, improved inclusivity and accessibility, and design and branding enhancements. Several successful outcomes from our approach were identified, including the recruitment of dedicated CAB members and interprofessional collaboration that included community members. Challenges included integration of multiple different approaches and levels of expertise, navigating TGNC individuals' participation without exploitation, and creating high-quality content on a limited budget.
Our process demonstrates the value of including a CAB in the design of a digital VCMT platform, and suggests a potential for community-based participatory research (CBPR) in laryngology and speech language pathology, where uptake of this framework has remained limited.
Level 5.
迄今为止,尚未对使用数字技术的跨性别者和性别不一致者(TGNC)进行声音和沟通调整训练(VCMT)的严格探索。我们试图评估并描述采用基于社区的方法进行应用程序开发的迭代过程。
组建了一个由语音保健专业人员、应用程序开发人员、设计师和TGNC社区成员组成的跨专业团队,以构思一款支持TGNC人群VCMT的移动应用程序的功能、内容和设计。主要通过口碑确定的六名TGNC个体作为社区咨询委员会(CAB)加入了开发团队。CAB在应用程序内容开发、设计选择和用户体验方面提供意见,在整个应用程序开发过程中跨学科协作并整合TGNC社区成员;在整个开发过程中评估社区参与性行动研究(CBPR)原则的适用性。
在应用程序开发过程中,内容创建和反馈的迭代周期产生了多个重大变化,包括功能增加、包容性和可及性提高以及设计和品牌提升。我们的方法取得了几个成功的成果,包括招募了敬业的CAB成员以及包括社区成员在内的跨专业协作。挑战包括整合多种不同的方法和专业水平、在不剥削的情况下引导TGNC个体参与以及在有限预算内创建高质量内容。
我们的过程证明了在数字VCMT平台设计中纳入CAB的价值,并表明在喉科学和言语语言病理学中基于社区的参与性研究(CBPR)具有潜力,而该框架的应用仍然有限。
5级。