Clarke Elaine, Singer Hannah, Schiltz Hillary, Lord Catherine
Department of Psychiatry, University of California, Los Angeles.
Am Psychol. 2024 Dec 16. doi: 10.1037/amp0001452.
Autism spectrum disorder is one of the most common neurodevelopmental conditions diagnosed in children. Most autism research, intervention, and policy focus exclusively on this condition in childhood, but autism often persists across the life course. This narrative review leverages data from 115 participants first diagnosed with autism between ages 2 and 3 years and subsequently followed for 3 decades ( = 30.93 years, = 3.41) to highlight key aspects of adult life and experiences for autistic individuals identified in early childhood. Compared to other autism samples, the participants described here are relatively diverse: 20% are Black or mixed race; 13% are female; 43% reside in Census-designated rural locations; and 37% have a primary caregiver without a college degree. Fifty participants have average cognitive abilities (mean intellectual quotient [] = 98.8, = 19.3) and are verbally fluent; the remaining 65 have an intellectual disability ( = 28.5, = 17.7) and/or are minimally verbal. In some ways, the adult experiences of autistic individuals are quite distinct from those of the general population, but important similarities exist also, particularly related to quality of life. As the number of autistic adults continues to rise, and increasing numbers of autistic adults seek out clinical and community services, high-quality research and clinical services focused on this population should be a priority for psychological science and practice. (PsycInfo Database Record (c) 2024 APA, all rights reserved).
自闭症谱系障碍是儿童中诊断出的最常见的神经发育疾病之一。大多数自闭症研究、干预措施和政策都只关注儿童期的这种疾病,但自闭症往往会持续一生。这篇叙述性综述利用了115名参与者的数据,这些参与者最初在2至3岁时被诊断为自闭症,随后被跟踪了30年(平均随访30.93年,标准差3.41年),以突出幼儿期确诊的自闭症个体成年生活和经历的关键方面。与其他自闭症样本相比,这里描述的参与者相对多样化:20%是黑人或混血儿;13%是女性;43%居住在人口普查指定的农村地区;37%的主要照顾者没有大学学历。50名参与者具有平均认知能力(平均智商[IQ]=98.8,标准差19.3)且语言流利;其余65名有智力障碍(平均智商=28.5,标准差17.7)和/或语言能力极低。在某些方面,自闭症个体的成年经历与普通人群的经历截然不同,但也存在重要的相似之处,特别是在生活质量方面。随着成年自闭症患者数量的持续增加,越来越多的成年自闭症患者寻求临床和社区服务,针对这一人群的高质量研究和临床服务应成为心理学科学和实践的优先事项。(PsycInfo数据库记录(c)2024美国心理学会,保留所有权利)