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对成年自闭症患者就业情况的批判性思考

Critical Reflections on Employment Among Autistic Adults.

作者信息

Nicholas David B, Klag Malvina

机构信息

Faculty of Social Work, University of Calgary, Central and Northern Alberta Region, Edmonton, Canada.

HEC Montréal, Montréal, Canada.

出版信息

Autism Adulthood. 2020 Dec 1;2(4):289-295. doi: 10.1089/aut.2020.0006. Epub 2020 Dec 11.

Abstract

UNLABELLED

Encouraging efforts have emerged in recent years to study and build employment opportunities for adults on the autism spectrum. In this Perspectives piece, we acknowledge this important work while offering critical reflections for consideration as the field of employment in autism advances. We call for five areas of increased focus: (1) nurturing long-term versus short-term employment success; (2) broadening employment readiness efforts beyond only the individual to the entire community employment ecosystem; (3) providing professional development that starts with an individual's strengths, and not with their disability; (4) building community employment support that can be independent of family support; and (5) striving for a good life versus just the next job. Overall, we aim to help galvanize the field toward greater consideration of individuals' quality of life and development, the broader community ecosystem around individuals and their families, and vocational stability over the life course, all on individuals' own terms.

LAY SUMMARY

Despite encouraging international efforts for the past 15 years to advance employment for autistic adults, a low percentage of autistic adults are employed at any given point in time. Moreover, research shows that some who are employed struggle in their work situations. Our goal is to begin a conversation about what we believe to be promising areas of future focus in advancing employment for autistic adults. We hope that autistic adults and their families, practitioners, researchers, and policy makers find these reflections useful as we work together toward better employment options for adults on the autism spectrum. As advocates, practitioners, researchers, and as a family member for one of us, we believe it is time to look beyond employment statistics and a historically short-term focus on employment. We would like to see a reorientation of our collective energies toward a longer-term view of employment that contributes to a good life for individuals, on their terms. Over the last 15 years, many employment advancement programs for autistic adults have shown promising results. We have seen positive impacts from evaluations of these programs that include improved skills, more hiring of autistic individuals, shifting employer attitudes, more inclusive work environments, and high levels of productivity among hired autistic adults. We also have increased our understanding about the characteristics of supportive work environments for autistic people. That said, we also know that there are continuing low levels of employment for autistic adults. Furthermore, whereas there are some successful stories of autistic adults gaining employment, there are also, as noted earlier, stories of adults who are struggling in the workplace, with some in low-paying jobs and not able to use their skills. We recommend five shifts in focus for the future: (1) nurture long-term rather than short-term employment success; (2) seek community-wide programming to support people on an ongoing basis, as opposed to a more narrow focus on individual-level job readiness; (3) provide professional development that starts with an individual's strengths, and not with their disability; (4) develop more comprehensive and accessible community resources instead of relying on families to offset community service gaps; and (5) uphold the goal of having a good life on one's own terms instead of only getting a job. We hope that these recommendations help spark new conversations and collective approaches toward improving the employment landscape for autistic individuals. These approaches would move beyond a short-term job focus and individual-level readiness programming to also build supportive community ecosystems around individuals over time. In this way, we hope that individuals can more easily achieve employment over the long term that both works for them and contributes to the important and overarching aim of quality of life.

摘要

未标注

近年来,为自闭症谱系成年患者研究并创造就业机会的工作取得了令人鼓舞的进展。在这篇观点文章中,我们认可这项重要工作,同时在自闭症就业领域不断发展的过程中提出批判性思考以供参考。我们呼吁重点关注五个领域:(1)培育长期而非短期的就业成功;(2)将就业准备工作的范围从仅关注个人拓展至整个社区就业生态系统;(3)提供基于个人优势而非残疾状况的职业发展培训;(4)建立独立于家庭支持的社区就业支持体系;(5)追求美好的生活而非仅仅是下一份工作。总体而言,我们旨在促使该领域更多地考虑个人的生活质量和发展、围绕个人及其家庭的更广泛社区生态系统,以及整个生命历程中的职业稳定性,所有这些都基于个人自身的条件。

简要概述

尽管在过去15年里国际社会为促进自闭症成年患者就业做出了令人鼓舞的努力,但在任何特定时间,受雇的自闭症成年患者比例都很低。此外,研究表明,一些就业的患者在工作中面临困难。我们的目标是开启一场关于我们认为在促进自闭症成年患者就业方面未来应重点关注的有前景领域的对话。我们希望自闭症成年患者及其家人、从业者、研究人员和政策制定者能发现这些思考有用,因为我们共同努力为自闭症谱系成年患者寻求更好的就业选择。作为倡导者、从业者、研究人员,以及我们其中一人的家庭成员,我们认为是时候超越就业统计数据以及历史上对就业的短期关注了。我们希望看到我们的集体精力重新转向对就业的更长远看法,这种看法能根据个人自身条件为其带来美好的生活。在过去15年里,许多针对自闭症成年患者的就业促进项目都显示出了有前景的成果。我们从这些项目的评估中看到了积极影响,包括技能提升、自闭症患者的更多聘用、雇主态度的转变、更具包容性的工作环境,以及被聘用的自闭症成年患者的高生产率。我们对自闭症患者支持性工作环境的特征也有了更多了解。话虽如此,我们也知道自闭症成年患者的就业水平仍然很低。此外,虽然有一些自闭症成年患者获得就业的成功案例,但如前所述,也有一些成年患者在工作场所挣扎的案例,一些人从事低薪工作且无法发挥他们的技能。我们建议未来在五个方面转变重点:(1)培育长期而非短期的就业成功;(2)寻求社区层面的持续规划以支持人们,而不是更狭隘地关注个人层面的就业准备;(3)提供基于个人优势而非残疾状况的职业发展培训;(4)开发更全面且易于获取的社区资源,而不是依赖家庭来弥补社区服务缺口;(5)坚持根据个人自身条件追求美好生活的目标,而不仅仅是获得一份工作。我们希望这些建议能激发新的对话和集体方法,以改善自闭症患者的就业前景。这些方法将超越短期的工作关注和个人层面的准备规划,随着时间推移围绕个人建立支持性的社区生态系统。通过这种方式,我们希望个人能够更轻松地长期实现适合自己的就业,这既对他们有益,又有助于实现生活质量这一重要且首要的目标。

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