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“我走不远或哪儿都去不了”:妇科癌症女性下肢淋巴水肿的经历

"I Cannot Walk Far or Go Anywhere": The Experience of Lower Limb Lymphedema Among Women With Gynecological Cancer.

作者信息

Hsu Yu-Yun, Liang Pei-Chi, Hsu Chia-Fang, Liu Chia-Yu, Ho Chien-Liang, Hsu Keng-Fu

机构信息

Author Affiliations: Department of Nursing, College of Medicine, National Cheng Kung University (Dr Y. Y. Hsu and Ms C. F. Hsu); Biomdcare Corporation, New Taipei (Ms Liang); and Nursing Department (Mrs Liu) and Surgery Department (Dr Ho), National Cheng Kung University Hospital; Department of Obstetrics and Gynecology, College of Medicine, National Cheng Kung University (Dr K. F. Hsu); and Obstetrics and Gynecology Department, National Cheng Kung University Hospital (Dr K. F. Hsu), Tainan, Taiwan, Republic of China.

出版信息

Cancer Nurs. 2024 Dec 17. doi: 10.1097/NCC.0000000000001439.

Abstract

BACKGROUND

Lower limb lymphedema (LLL) significantly impacts the quality of life in women who have undergone gynecological cancer surgery, limiting their physical activities, household chores, and social interactions. Despite its prevalence, there is a lack of comprehensive understanding of the lived experiences of these women.

OBJECTIVE

To explore the experiences of LLL in Taiwanese women following gynecological cancer surgery.

METHODS

Using a qualitative, descriptive design, 12 Taiwanese participants aged between 48 and 74 years who had LLL after gynecological cancer surgery were interviewed. Interview data were analyzed using inductive content analysis to identify key themes and subthemes.

RESULTS

Four main themes and 13 subthemes emerged from the data: lacking awareness and vigilance, suffering from lymphedema, adapting to body image changes, and self-managing everyday life. These themes illustrate the extensive physical, psychological, and social challenges faced by the participants.

CONCLUSION

Findings depict the profound impact of LLL on daily life among Taiwanese women after gynecological cancer surgery. The findings highlight the need for comprehensive care that addresses the multifaceted challenges posed by lymphedema.

IMPLICATION FOR PRACTICE

Oncology healthcare providers should integrate education and symptom management skills about lymphedema into patient care. In addition, there is an urgent need for accessible lymphedema care resources to support these women.

摘要

背景

下肢淋巴水肿(LLL)对接受妇科癌症手术的女性的生活质量有显著影响,限制了她们的身体活动、家务劳动和社交互动。尽管其普遍存在,但对这些女性的生活经历缺乏全面了解。

目的

探讨台湾女性在妇科癌症手术后发生下肢淋巴水肿的经历。

方法

采用定性描述性设计,对12名年龄在48至74岁之间、妇科癌症手术后出现下肢淋巴水肿的台湾参与者进行访谈。访谈数据采用归纳性内容分析法进行分析,以确定关键主题和子主题。

结果

数据中出现了四个主要主题和13个子主题:缺乏认识和警惕、遭受淋巴水肿之苦、适应身体形象变化以及自我管理日常生活。这些主题说明了参与者所面临的广泛的身体、心理和社会挑战。

结论

研究结果描述了下肢淋巴水肿对台湾妇科癌症手术后女性日常生活的深远影响。研究结果强调需要提供全面的护理,以应对淋巴水肿带来的多方面挑战。

对实践的启示

肿瘤医疗服务提供者应将有关淋巴水肿的教育和症状管理技能纳入患者护理中。此外,迫切需要提供可获得的淋巴水肿护理资源来支持这些女性。

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