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乳腺癌相关淋巴水肿女性的支持性护理需求的生活体验:一项现象学研究。

Lived Experiences for Supportive Care Needs of Women with Breast Cancer-Related Lymphedema: A Phenomenological Study.

机构信息

Hacettepe University, Ankara, Turkey.

Ankara City Hospital, Ankara, Turkey.

出版信息

Clin Nurs Res. 2021 Jul;30(6):799-808. doi: 10.1177/1054773820958115. Epub 2020 Sep 21.

Abstract

This descriptive phenomenological study was conducted to explore the lived experiences for supportive care needs of women with breast cancer-related lymphedema. Purposive sampling was used to recruit participants. In-depth, semi-structured interviews were conducted to collect data. Thematic analysis method was used for data analysis. Data saturation was achieved after interviewing 19 participants. The study was divided into four main themes and nine subthemes: physical (caused by difficulties in performing household chores, limitations in performing self-care activities, and challenges in shopping), psychosocial (being addicted to someone else in daily life, uncertainty about the future, social, and religious support), healthcare systems and information (attention from healthcare professionals, education and lifestyle advices, and access to healthcare sources), and financial supportive care needs. Women experience various SCNs in their daily lives. Provision of supportive care from both family members or others and healthcare professionals could ease the daily lives, improve physical, and psychosocial well-being.

摘要

本描述性现象学研究旨在探讨患有乳腺癌相关淋巴水肿的女性的支持性护理需求的生活体验。采用目的抽样法招募参与者。通过深入的半结构化访谈收集数据。使用主题分析方法进行数据分析。在采访了 19 名参与者后达到了数据饱和。研究分为四个主要主题和九个子主题:身体(因做家务困难、自我护理活动受限以及购物挑战引起)、心理社会(日常生活中对他人的依赖、对未来的不确定性、社会和宗教支持)、医疗保健系统和信息(来自医疗保健专业人员的关注、教育和生活方式建议以及获得医疗保健资源)以及经济支持性护理需求。女性在日常生活中会经历各种支持性护理需求。家庭成员或其他人以及医疗保健专业人员提供的支持性护理可以减轻日常生活负担,改善身体和心理社会健康。

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