在亚洲背景下,痴呆症患者非专业照护者的积极照护方面:一项定性研究。
Positive aspects of caregiving among informal caregivers of persons with dementia in the Asian context: a qualitative study.
机构信息
Research Division, Institute of Mental Health, Buangkok Green Medical Park, 10 Buangkok View, Singapore, 539747, Singapore.
Department of Geriatric Psychiatry, Institute of Mental Health, Singapore, Singapore.
出版信息
BMC Geriatr. 2023 Jan 27;23(1):51. doi: 10.1186/s12877-023-03767-8.
BACKGROUND
Positive aspects of caregiving are important coping resources for informal caregivers of persons with dementia (PWD). However, existing studies mostly focused on caregivers from western societies and less attention was paid to the potential cultural differences. This study aims to explore positive aspects of caregiving in the Asian context.
METHODS
A qualitative methodology with semi-structured interviews was adopted. A total of 29 informal caregivers of PWD in Singapore were interviewed from Apr 2019 to Dec 2020. All the interviews were audio-recorded and transcribed verbatim for the analysis. Inductive thematic analysis was conducted.
RESULTS
The results revealed a total of three major themes with 11 sub-themes including: 1) positive aspects within self (i.e., better understanding of dementia and caregiving, personal growth, role satisfaction, and improved awareness of self-care); 2) positive aspects between caregiver and PWD (i.e., chance to demonstrate filial piety towards PWD, happiness and positive attitudes of PWD, positive interactions with PWD, and closer relationships with PWD); and 3) positive aspects between caregiver and others (i.e., empathy towards other caregivers, befriending peers, and sharing dementia and caregiving knowledge with others).
DISCUSSION
Findings from this study improved our understanding on positive aspects of caregiving among informal caregivers of PWD in the Asian context. In addition to similar themes across cultures such as personal growth, our study identified a few unique themes like improved awareness of self-care and chances to demonstrate filial piety. For future studies targeting Asian caregivers, it is necessary to include these cultural-specific positive aspects of caregiving.
背景
积极的照护方面是痴呆患者(PWD)非专业照护者的重要应对资源。然而,现有研究大多集中在西方社会的照护者,而对潜在的文化差异关注较少。本研究旨在探讨亚洲背景下的积极照护方面。
方法
采用定性方法,采用半结构式访谈。2019 年 4 月至 2020 年 12 月,共对新加坡 29 名 PWD 的非专业照护者进行了访谈。所有访谈均进行了录音,并逐字转录进行分析。采用归纳主题分析。
结果
结果共揭示了三个主要主题和 11 个次主题,包括:1)自我内的积极方面(即更好地了解痴呆症和照护、个人成长、角色满意度和自我照护意识提高);2)照护者与 PWD 之间的积极方面(即向 PWD 表现孝道的机会、PWD 的幸福和积极态度、与 PWD 的积极互动、与 PWD 的更紧密关系);3)照护者与他人之间的积极方面(即对其他照护者的同理心、与同龄人交朋友、与他人分享痴呆症和照护知识)。
讨论
本研究的结果提高了我们对亚洲背景下 PWD 非专业照护者积极照护方面的理解。除了个人成长等跨文化相似主题外,本研究还确定了一些独特的主题,如提高自我照护意识和表现孝道的机会。对于针对亚洲照护者的未来研究,有必要纳入这些具有文化特色的积极照护方面。