Kanniappan Vadivelan, Muthuperumal Prakash, Venkataraman P, Veeragoudhaman T S, Chinnasami Balaji, Muthiah Manikumar, Jayapal Rajeswari Abishek, Manoharan Manju Bashini, Suresh Shrisruthi, Natesan Ashok
SRM College of Physiotherapy, Faculty of Medicine and Health Sciences, SRM Institute of Science and Technology, Kattankulathur, Chengalpattu, Tamil Nadu, 603203, India.
School of Public Health, Faculty of Medicine and Health Sciences, SRM Institute of Science and Technology, Kattankulathur, Chengalpattu, Tamil Nadu, 603203, India.
J Health Popul Nutr. 2024 Dec 18;43(1):210. doi: 10.1186/s41043-024-00686-1.
Approximately 1 in 8 children under the age of 6 in Tamil Nadu are diagnosed with neurodevelopmental disorders (NDD), yet only a fraction of these children receives proper medical care. The unequal distribution of healthcare services is mainly due to the lack of accessibility, especially in rural areas, leading to a significant burden on caregivers. This research aims to alleviate caregiver burden and reduce disability in preschool children by establishing model clinics or specialized outreach centers in rural villages, supported by SRM Institute of Science and Technology under the Unnat Bharat Abhiyan Scheme.(UBA-SRMIST).
The study will commence with screening all preschool children registered in Anganwadi in the designated villages. Tailored model clinics will be set up in these villages based on the prevalence of NDD. Once established, children diagnosed with NDD will undergo rehabilitation for a year. Baseline and endline assessments will be conducted to evaluate the effectiveness of the model center on both the child's disability and the caregiver burden.
This research will demonstrate the effectiveness of a model outreach center in rural villages in reducing disability levels in children and alleviating caregiver burden by eliminating the need for long travels to access rehabilitation services. The findings of this study will not only contribute to the objectives of UBA-SRMIST in uplifting villages but also facilitate the creation of registries and provision of data to the government for the implementation of policies that address the current disparities in healthcare access. Trial registration Trail has been registered under Clinical Trials Registry-India (CTRI/2024/06/069196).
在泰米尔纳德邦，约八分之一的6岁以下儿童被诊断患有神经发育障碍（NDD），但这些儿童中只有一小部分得到了适当的医疗护理。医疗服务分配不均主要是由于缺乏可及性，尤其是在农村地区，这给照顾者带来了巨大负担。本研究旨在通过在农村村庄建立示范诊所或专门的外展中心来减轻照顾者的负担，并减少学龄前儿童的残疾情况，该研究由SRM科技学院根据“印度农村发展计划”（UBA - SRMIST）提供支持。
该研究将首先对指定村庄中在安甘瓦迪登记的所有学龄前儿童进行筛查。将根据NDD的患病率在这些村庄设立量身定制的示范诊所。一旦建立，被诊断患有NDD的儿童将接受为期一年的康复治疗。将进行基线和终末评估，以评估示范中心对儿童残疾和照顾者负担的有效性。
本研究将证明农村村庄示范外展中心在降低儿童残疾水平和减轻照顾者负担方面的有效性，方法是消除为获得康复服务而长途跋涉的需求。本研究的结果不仅将有助于UBA - SRMIST实现改善村庄的目标，还将促进建立登记册并向政府提供数据，以实施解决当前医疗服务可及性差距的政策。试验注册 该试验已在印度临床试验注册中心（CTRI/2024/06/069196）注册。
