Hamdi Wafa, Migowa Angela, Lassoued Ferjani Hanene, Fazaa Alia, Faleye Ayodele, Miladi Saoussen, Maatallah Kaouther, Ben Abdelghani Kawther
Department of Rheumatology, Kassab Institute, Faculty of Medicine of Tunis, Tunis El Manar University, Tunis, Tunisia.
Department of Paediatrics and Child Health, Aga Khan University Medical College East Africa, Nairobi, Kenya.
Front Pediatr. 2024 Dec 3;12:1479857. doi: 10.3389/fped.2024.1479857. eCollection 2024.
Patient education is crucial in managing chronic diseases like Juvenile Idiopathic Arthritis (JIA). Traditional methods such as videos and brochures often fail to maintain long-term knowledge retention. Therapeutic Patient Education (TPE) offers a more effective, patient-centered approach.
PAFLAR aimed to implement a TPE program with a "train the trainers" masterclass to ensure effective delivery and improve outcomes for children with JIA.
PAFLAR's TPE program was designed through a focus group, involving a literature review and strategic planning for the implementation step. The program includes specialized training for healthcare professionals enhancing their abilities to deliver TPE workshops. Participants were selected based on volunteerism and commitment to the project. Evaluations were conducted through feedback assessment of both patients and participants.
PAFLAR launched a TPE program in 2023, aimed at training healthcare providers to implement TPE effectively. This initiative included both in-person and virtual masterclasses, resulting in five workshops conducted in Kenya, Tunisia, and Nigeria. These workshops covered various aspects of JIA management, such as patient and family education, self-esteem, physical activity, treatment adherence, and pain management. Early results showed significant improvements in patients' and parents' understanding and management of JIA, with positive feedback indicating a need for further sessions.
PAFLAR has taken the initial step in implementing a TPE program for JIA across three countries, representing different regions of Africa. The TPE program offers a promising alternative to traditional patient education methods, significantly improving patient care, empowering healthcare providers, and advancing healthcare systems.
患者教育在管理青少年特发性关节炎（JIA）等慢性病方面至关重要。视频和宣传册等传统方法往往无法长期保持患者的知识记忆。治疗性患者教育（TPE）提供了一种更有效、以患者为中心的方法。
泛非风湿病联盟（PAFLAR）旨在通过举办“培训培训师”大师班来实施TPE项目，以确保有效开展并改善JIA患儿的治疗效果。
PAFLAR的TPE项目通过焦点小组进行设计，包括文献综述和实施步骤的战略规划。该项目包括为医疗保健专业人员提供专门培训，以提高他们开展TPE工作坊的能力。参与者是根据志愿服务精神和对项目的承诺挑选出来的。通过对患者和参与者的反馈评估进行评价。
PAFLAR于2023年启动了一个TPE项目，旨在培训医疗保健提供者有效实施TPE。该倡议包括面对面和虚拟大师班，在肯尼亚、突尼斯和尼日利亚举办了五场工作坊。这些工作坊涵盖了JIA管理的各个方面，如患者和家庭教育、自尊、体育活动、治疗依从性和疼痛管理。早期结果显示，患者和家长对JIA的理解和管理有了显著改善，积极反馈表明需要进一步开展课程。
PAFLAR已迈出在非洲三个不同地区的国家实施JIA的TPE项目的第一步。TPE项目为传统患者教育方法提供了一个有前景的替代方案，显著改善了患者护理，增强了医疗保健提供者的能力，并推动了医疗保健系统的发展。
