青少年和青年人与患者导航员合作的过渡经历。
Transition experiences of adolescents and young adults working with a patient navigator.
作者信息
San Martin-Feeney Daniella, Samborn Sophie, Allemang Brooke, Patton Megan, Punjwani Zoya, Pfister Ken, Ryan Laurel, Guilcher Gregory M T, Hamiwka Lorraine, Klarenbach Scott, Lang Eddy, McBrien Kerry, Nettel-Aguirre Alberto, Pacaud Danièle, Pinzon Jorge, Scott Shannon D, Zwaigenbaum Lonnie, Perrott Curtis, Andersen John, Andrew Gail, Mackie Andrew S, Samuel Susan, Dimitropoulos Gina
机构信息
Department of Pediatrics, University of Alberta, Edmonton, Canada.
Department of Pediatrics, University of Calgary, Calgary, Canada.
出版信息
Health Care Transit. 2024 Nov 30;3:100088. doi: 10.1016/j.hctj.2024.100088. eCollection 2025.
INTRODUCTION
The transition from pediatric to adult care poses challenges for adolescents and young adults (AYA) with chronic conditions and their caregivers. A patient navigator (PN) intervention may mitigate transition-related barriers.
METHODS
A qualitative study was conducted within a pragmatic randomized controlled trial. A purposive sample was recruited of AYA with diverse diagnostic and demographic characteristics who worked with the PN and/or their caregivers. Seventeen participants completed semi-structured interviews at baseline and post-intervention and optional journal entries. Thematic analysis was used inductively.
RESULTS
Analysis yielded two themes from baseline interviews: 1) uncertainty and hesitation with leaving a place of support, 2) navigator assistance with post-secondary education, and three themes from post-intervention interviews: 1) emotional support, 2) informational and task-focused support, 3) navigator guidance to become more independent.
DISCUSSION
Our findings describe the needs of AYA and the experience of PN support; our findings may guide future implementation of PNs in transition care.
引言
从儿科护理过渡到成人护理，给患有慢性病的青少年和青年（AYA）及其照顾者带来了挑战。患者导航员（PN）干预可能会减轻与过渡相关的障碍。
方法
在一项实用随机对照试验中进行了定性研究。招募了具有不同诊断和人口统计学特征的AYA及其照顾者作为目的抽样样本。17名参与者在基线和干预后完成了半结构化访谈以及可选的日志记录。采用归纳法进行主题分析。
结果
基线访谈分析得出两个主题：1）离开支持场所时的不确定性和犹豫，2）导航员对高等教育的协助；干预后访谈分析得出三个主题：1）情感支持，2）信息和任务导向型支持，3）导航员指导以实现更大程度的独立。
讨论
我们的研究结果描述了AYA的需求以及PN支持的经验；我们的研究结果可能会指导未来PN在过渡护理中的实施。
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