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Pediatrics. 2020 Nov;146(5). doi: 10.1542/peds.2020-0187. Epub 2020 Oct 12.
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Transition to adult care in cystic fibrosis: The challenges and the structure.囊性纤维化患者向成人医疗护理的过渡:挑战与架构
Paediatr Respir Rev. 2022 Mar;41:23-29. doi: 10.1016/j.prrv.2020.07.009. Epub 2020 Aug 2.
3
Parental Stress as a Child With Diabetes Transitions From Adolescence to Emerging Adulthood.患有糖尿病的孩子从青少年期过渡到成年早期时父母的压力
J Patient Exp. 2020 Jun;7(3):365-371. doi: 10.1177/2374373519842963. Epub 2019 May 2.
4
Perspectives from primary health care providers on their roles for supporting adolescents and young adults transitioning from pediatric services.初级保健提供者对支持青少年和青年从儿科服务过渡的角色的看法。
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J Pediatr. 2020 Jun;221:201-206.e1. doi: 10.1016/j.jpeds.2020.02.040.
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Improving transitions in care for children with complex and medically fragile needs: a mixed methods study.改善有复杂和医疗脆弱需求的儿童的护理过渡:一项混合方法研究。
BMC Pediatr. 2020 May 14;20(1):219. doi: 10.1186/s12887-020-02117-6.
7
Primary Care Providers Involvement in Caring for Young Adults with Complex Chronic Conditions Exiting Pediatric Care: An Integrative Literature Review.初级保健提供者在照顾即将离开儿科护理的患有复杂慢性疾病的年轻成年人方面的参与:综合文献综述。
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Transition and Transfer From Pediatric to Adult Congenital Heart Disease Care in Canada: Call For Strategic Implementation.加拿大儿科至成人先天性心脏病治疗的转介和交接:呼吁战略实施。
Can J Cardiol. 2019 Dec;35(12):1640-1651. doi: 10.1016/j.cjca.2019.08.014. Epub 2019 Aug 22.
9
Association of Primary Care Continuity With Outcomes Following Transition to Adult Care for Adolescents With Severe Mental Illness.初级保健连续性与青少年严重精神疾病过渡到成人护理后的结果的关联。
JAMA Netw Open. 2019 Aug 2;2(8):e198415. doi: 10.1001/jamanetworkopen.2019.8415.
10
Adolescent patients with chronic health conditions transitioning into adult care: What role should family physicians play?患有慢性健康问题的青少年患者向成人医疗过渡:家庭医生应扮演什么角色?
Can Fam Physician. 2019 May;65(5):317-319.

行动呼吁:改善有复杂医疗需求的青少年向成人护理过渡的建议。

A call for action: Recommendations to improve transition to adult care for youth with complex health care needs.

作者信息

Toulany Alene, Gorter Jan Willem, Harrison Megan

机构信息

Canadian Paediatric Society, Adolescent Health Committee, Ottawa, Ontario, Canada.

出版信息

Paediatr Child Health. 2022 Aug 22;27(5):297-309. doi: 10.1093/pch/pxac047. eCollection 2022 Sep.

DOI:10.1093/pch/pxac047
PMID:36016593
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9394635/
Abstract

Youth with complex health care needs, defined as those requiring specialized health care and services for physical, developmental, and/or mental health conditions, are often cared for by paediatricians and paediatric specialists. In Canada, the age at which provincial/territorial funders mandate the transfer of paediatric care to adult services varies, ranging between 16 and 19 years. The current configuration of distinct paediatric and adult care service boundaries is fragmentary, raising barriers to continuity of care during an already vulnerable developmental period. For youth, the lack of care integration across sectors can negatively impact health engagement and jeopardize health outcomes into adulthood. To address these barriers and improve transition outcomes, paediatric and adult care providers, as well as family physicians and other community partners, must collaborate in meaningful ways to develop system-based strategies that streamline and safeguard care for youth transitioning to adult services across tertiary, community, and primary care settings. Flexible age cut-offs for transfer to adult care are recommended, along with considering each youth's developmental stage and capacity as well as patient and family needs and circumstances. Specialized training and education in transitional care issues are needed to build capacity and ensure that health care providers across diverse disciplines and settings are better equipped to accept and care for young people with complex health care needs.

摘要

有复杂医疗需求的青少年,即那些因身体、发育和/或心理健康状况而需要专门医疗保健和服务的青少年,通常由儿科医生和儿科专家进行护理。在加拿大,省级/地区资助者规定将儿科护理转至成人服务的年龄各不相同,介于16岁至19岁之间。目前儿科和成人护理服务界限分明的配置是支离破碎的,在本就脆弱的发育阶段给持续护理带来了障碍。对于青少年而言,各部门之间缺乏护理整合会对健康参与产生负面影响,并危及成年后的健康结果。为了消除这些障碍并改善过渡结果,儿科和成人护理提供者以及家庭医生和其他社区合作伙伴必须以有意义的方式合作,制定基于系统的策略,以简化和保障为过渡到成人服务的青少年在三级医疗、社区医疗和初级医疗环境中的护理。建议采用灵活的转至成人护理的年龄界限,同时考虑每个青少年的发育阶段和能力以及患者和家庭的需求与情况。需要开展关于过渡护理问题的专门培训和教育,以建设能力,并确保不同学科和环境中的医疗保健提供者更有能力接纳和护理有复杂医疗需求的年轻人。