Morgan Prue, Zanudin Asfarina
Monash University, Frankston, VIC, Australia.
Universiti Kebangsaan Malaysia, Kuala Lumpur, Federal Territory of Kuala Lumpur, Malaysia.
J Prim Care Community Health. 2025 Jan-Dec;16:21501319251320160. doi: 10.1177/21501319251320160. Epub 2025 Mar 12.
Individuals with cerebral palsy (CP) experience acute and chronic health issues requiring lifespan primary care. This review aimed to investigate characteristics and utilization of general practitioner (GP) access by adults with CP. Secondary aims included exploring reasons prompting access, identifying interventions provided, and personal features affecting access.
Using systematic review methodology, 5 databases were searched using keywords relating to adults, CP, and primary care, relating to quantitative studies (January 2000-July 2024). Data was extracted, collated, and analyzed descriptively, with additional meta-analyses to estimate proportion of GP visits.
Fifteen studies were included describing GP access by 6231 adults with CP. The proportion annually accessing a GP was 78% (95% CI = 69%-85%). The frequency of GP access ranged from 1.76 to 11.7 visits per year, increased with advancing age and disability severity. Comorbid intellectual disability and pain also increased GP attendance. Limited data was available reporting healthcare needs prompting GP access, and no interventions were described.
Advancing age, greater disability severity, comorbid intellectual disability, and pain may prompt increased GP access by adults with CP. Identification of reasons for seeking primary care, and interventions provided are required through data linkage studies to enhance lifespan care.
脑瘫（CP）患者面临急性和慢性健康问题，需要终身初级保健。本综述旨在调查成年脑瘫患者获得全科医生（GP）服务的特征和利用情况。次要目标包括探究促使患者就诊的原因、确定提供的干预措施以及影响就诊的个人特征。
采用系统综述方法，使用与成年人、脑瘫和初级保健相关的关键词，检索了5个数据库（2000年1月至2024年7月的定量研究）。对数据进行提取、整理和描述性分析，并进行额外的荟萃分析以估计全科医生就诊的比例。
纳入了15项研究，描述了6231名成年脑瘫患者获得全科医生服务的情况。每年看全科医生的比例为78%（95%可信区间=69%-85%）。全科医生就诊频率为每年1.76至11.7次，随年龄增长和残疾严重程度增加而增加。合并智力残疾和疼痛也会增加看全科医生的次数。关于促使患者看全科医生的医疗保健需求的数据有限，且未描述干预措施。
年龄增长、残疾严重程度增加、合并智力残疾和疼痛可能促使成年脑瘫患者增加看全科医生的次数。需要通过数据关联研究确定寻求初级保健的原因以及提供的干预措施，以加强终身护理。
