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炎症性肠病青年患者圆桌会议:多利益相关方视角及患者驱动的对当前过渡挑战和研究差距的分析

Roundtable on Young Adults with IBD: A multi-stakeholder perspective and patient-driven analysis of the current transitional challenges and gaps in research.

作者信息

Dave Sneha, Reed Sydney, Patel Kajal, Kim Sandra C

机构信息

Generation Patient, USA.

Herbert Wertheim College of Medicine, USA.

出版信息

Health Care Transit. 2023 Jun 28;1:100006. doi: 10.1016/j.hctj.2023.100006. eCollection 2023.

Abstract

The "Roundtable on Young Adults with IBD" is a year-long learning community consisting of monthly discussions between providers, patients, and healthcare partners. The group aims to enhance outcomes for the young adult IBD patient population. The first discussion centered on the difficulties that IBD patients face during the transition from pediatric to adult care and how care can be improved for young adult patients during this phase. The group discussed the need to identify developmental milestones for young adult patients, further screening for disordered eating, and the importance of collaboration between specialists and pediatric and adult providers for a successful transition. Additionally, the group highlighted areas of concern such as the spread of misinformation through social media, social determinants of health, and the potential lifelong psychosocial, mental, and economic burdens of IBD for the young adult patient population.

摘要

“炎症性肠病青年患者圆桌会议”是一个为期一年的学习社区,由医疗服务提供者、患者和医疗保健合作伙伴每月进行讨论组成。该小组旨在改善炎症性肠病青年患者群体的治疗效果。首次讨论聚焦于炎症性肠病患者从儿科护理过渡到成人护理期间所面临的困难,以及在此阶段如何改善对青年成年患者的护理。小组讨论了确定青年成年患者发育里程碑的必要性、进一步筛查饮食失调情况,以及专家与儿科和成人医疗服务提供者之间合作对于成功过渡的重要性。此外,小组还强调了一些令人担忧的领域,如错误信息在社交媒体上的传播、健康的社会决定因素,以及炎症性肠病对青年成年患者群体潜在的终身心理、精神和经济负担。

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本文引用的文献

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Depression and Anxiety Disorders in Patients With Inflammatory Bowel Disease.炎症性肠病患者的抑郁和焦虑障碍
Front Psychiatry. 2021 Oct 8;12:714057. doi: 10.3389/fpsyt.2021.714057. eCollection 2021.
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