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关爱患有炎症性肠病的青年男性:临床医生与患者视角

Caring for young adult men with inflammatory bowel disease: Clinician and patient perspectives.

作者信息

Bugwadia Amy K, Reed Sydney, Finkelstein Adam, Park Peter, Quinn Colin, Dave Sneha, Jayswal Nikhil, Stewart Grady, Kohler David, Jacobs Noel, Barber Grant E

机构信息

Stanford University School of Medicine, United States.

Generation Patient, United States.

出版信息

Health Care Transit. 2024 Jan 31;2:100043. doi: 10.1016/j.hctj.2024.100043. eCollection 2024.

DOI:10.1016/j.hctj.2024.100043
PMID:39712589
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11657335/
Abstract

Inflammatory bowel disease (IBD) presents unique challenges for young adult men that extend beyond physical symptoms, encompassing psychosocial dimensions affecting all aspects of life. This article draws insights from a roundtable discussion facilitated by the Crohn's and Colitis Young Adults Network (CCYAN), focusing on the experiences of young men living with IBD. It sheds light on the intersections of IBD and men's sexual and reproductive health, fertility, and mental well-being while identifying gaps in care. The article offers recommendations for clinicians and emphasizes the role of care partners and social support, underlining the need for dedicated support structures to improve the lives of men living with IBD.

摘要

炎症性肠病(IBD)给年轻成年男性带来了独特的挑战,这些挑战不仅限于身体症状,还包括影响生活方方面面的心理社会层面。本文借鉴了由克罗恩病和结肠炎青年网络(CCYAN)组织的一次圆桌讨论的见解,重点关注患有IBD的年轻男性的经历。它揭示了IBD与男性性健康和生殖健康、生育能力以及心理健康的交叉点,同时找出了护理方面的差距。本文为临床医生提供了建议,并强调了护理伙伴和社会支持的作用,强调需要有专门的支持结构来改善患有IBD的男性的生活。

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Caring for young adult men with inflammatory bowel disease: Clinician and patient perspectives.关爱患有炎症性肠病的青年男性:临床医生与患者视角
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本文引用的文献

1
Association between inflammatory bowel disease and subsequent depression or anxiety disorders - A retrospective cohort study of 31,728 outpatients.炎症性肠病与后续抑郁或焦虑症之间的关联——一项对31728名门诊患者的回顾性队列研究。
J Psychiatr Res. 2024 Jan;169:231-237. doi: 10.1016/j.jpsychires.2023.11.026. Epub 2023 Nov 22.
2
Variability of Psychosocial Services Within the ImproveCareNow Learning Health System: Opportunities for Optimization.“改善医疗现在”学习型健康系统中心理社会服务的可变性:优化机遇
JPGN Rep. 2023 Aug 16;4(4):e349. doi: 10.1097/PG9.0000000000000349. eCollection 2023 Nov.
3
Healthcare professionals' priorities for training to identify and manage distress experienced by young people with a stoma due to inflammatory bowel disease: a consensus study using online nominal group technique.医疗保健专业人员识别和管理因炎症性肠病而造口的年轻人的困扰的培训重点:使用在线名义群体技术的共识研究。
BMJ Open. 2023 Nov 29;13(11):e072360. doi: 10.1136/bmjopen-2023-072360.
4
Inflammatory bowel disease (ulcerative colitis type) severity shows inverse correlation with semen parameters and testosterone levels.炎症性肠病(溃疡性结肠炎型)的严重程度与精液参数和睾酮水平呈负相关。
Asian J Androl. 2024 Mar 1;26(2):155-159. doi: 10.4103/aja202353. Epub 2023 Nov 7.
5
IBD Camp Oasis: A look at Participants' Social-Emotional Well-Being and Protective Factors During Camp and Beyond.炎症性肠病绿洲营地:审视营期及之后参与者的社会情感幸福感和保护因素。
Crohns Colitis 360. 2023 Aug 24;5(3):otad042. doi: 10.1093/crocol/otad042. eCollection 2023 Jul.
6
The 2023 Impact of Inflammatory Bowel Disease in Canada: Mental Health and Inflammatory Bowel Disease.2023年炎症性肠病对加拿大的影响:心理健康与炎症性肠病
J Can Assoc Gastroenterol. 2023 Sep 5;6(Suppl 2):S64-S75. doi: 10.1093/jcag/gwad012. eCollection 2023 Sep.
7
Inflammatory bowel disease meets fertility: A physician and patient survey.炎症性肠病与生育能力:一项医生和患者调查。
Dig Liver Dis. 2023 Jul;55(7):888-898. doi: 10.1016/j.dld.2023.01.149. Epub 2023 Jan 23.
8
Paternal Medications in Inflammatory Bowel Disease and Male Fertility and Reproductive Outcomes: A Systematic Review and Meta-analysis.炎症性肠病中父亲用药与男性生育力及生殖结局:一项系统评价与荟萃分析
Clin Gastroenterol Hepatol. 2023 Aug;21(9):2222-2238. doi: 10.1016/j.cgh.2022.07.008. Epub 2022 Jul 20.
9
Editorial: measuring fertility in men with inflammatory bowel disease.社论:测量炎症性肠病男性患者的生育能力
Aliment Pharmacol Ther. 2022 Jul;56(2):345-346. doi: 10.1111/apt.17071.
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Patients' Experiences and Challenges in Living with Inflammatory Bowel Disease: A Qualitative Approach.炎症性肠病患者的生活经历与挑战:一种定性研究方法
Clin Exp Gastroenterol. 2021 Apr 28;14:123-131. doi: 10.2147/CEG.S303688. eCollection 2021.