针对炎症性肠病青年患者的同伴支持干预措施。
Peer support interventions for young adults with inflammatory bowel diseases.
作者信息
Dave Sneha, Bugwadia Amy, Kohut Sara Ahola, Reed Sydney, Shapiro Mara, Michel Hilary K
机构信息
Generation Patient, USA.
Stanford University School of Medicine, USA.
出版信息
Health Care Transit. 2023 Sep 12;1:100018. doi: 10.1016/j.hctj.2023.100018. eCollection 2023.
The "Roundtable on Young Adults with Inflammatory Bowel Diseases (IBD)" is a year-long learning community organized by the Crohn's and Colitis Young Adults Network with monthly discussions between healthcare professionals, patients, and community-based partners. The group aims to improve outcomes for the young adult IBD patient population. The roundtable discussion highlighted in this article centered on the critical importance of peer support for adolescents and young adults (AYA) with IBD. The discussion underscored the need for increased research in peer support, the need to further consider peer support as an intervention, and the value of multi-stakeholder, peer-led collaboration in reducing isolation for young adults with IBD. Additionally, the group identified areas of opportunity, such as developing more appropriate metrics and scales to prove the inherent value of peer support for young adults with IBD.
“炎症性肠病（IBD）青年圆桌会议”是由克罗恩病和结肠炎青年网络组织的为期一年的学习社区，医疗保健专业人员、患者和社区合作伙伴每月进行一次讨论。该组织旨在改善炎症性肠病青年患者群体的治疗效果。本文重点介绍的圆桌会议讨论围绕同伴支持对患有炎症性肠病的青少年和青年（AYA）的至关重要性展开。讨论强调了加强同伴支持研究的必要性、将同伴支持进一步视为一种干预措施的必要性，以及多方利益相关者、同伴主导的合作在减少炎症性肠病青年患者孤立感方面的价值。此外，该小组还确定了机会领域，例如制定更合适的指标和量表，以证明同伴支持对炎症性肠病青年患者的内在价值。
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