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哪些因素与纤维肌痛管理中患者成为积极参与者相关?一项混合方法系统评价方案。

What Factors Are Associated With Patients Being Active Partners in the Management Fibromyalgia? A Mixed Methods Systematic Review Protocol.

作者信息

Coggins Jessica, Ndosi Mwidimi, Pearson Jennifer

机构信息

School of Health and Social Wellbeing, University of the West of England, Bristol, UK.

Academic Rheumatology Unit, University Hospitals Bristol and Weston NHS Foundation Trust, Bristol Royal Infirmary, Bristol, UK.

出版信息

Musculoskeletal Care. 2024 Dec;22(4):e70033. doi: 10.1002/msc.70033.

Abstract

BACKGROUND

Fibromyalgia Syndrome (FMS) is characterised by widespread and persistent pain, intrusive fatigue and cognitive issues, affecting approximately 5.4% of the UK population. Non-pharmacological therapies and education are current management recommendations, but these approaches rely on patients having an active role in their healthcare management. It is therefore important to identify the factors associated with FMS patients being active partners, as this could influence person-centred care provision.

AIM

The aim of this study is to explore the factors associated with patients being an active partner in the management of FMS.

METHODS

This is a protocol for mixed methods systematic literature review with convergent integrated approach in accordance with JBI methodology. The databases AMED, MEDLINE, PsychINFO and CINAHL will be searched via EBSCOhost. Screening and selection will be conducted by two reviewers. Primary qualitative, observational and experimental studies from July 2005 to July 2024 will be included. Critical appraisal of eligible studies will be conducted using appropriate JBI tools. Data will be extracted, transformed where necessary and synthesised without meta-analysis.

DISCUSSION

This mixed methods systematic review will provide a comprehensive understanding of the factors associated with patients being active partners, offering not only the 'what' but also the 'why' behind patients taking an active role in their healthcare. This will help guide future research and practice in supporting patients to be active partners in FMS management.

TRIAL REGISTRATION

This systematic review has been registered with PROSPERO (registration number: CRD42024575159).

摘要

背景

纤维肌痛综合征(FMS)的特征是广泛且持续的疼痛、难以消除的疲劳和认知问题,影响了约5.4%的英国人口。非药物疗法和健康教育是目前的治疗建议,但这些方法依赖于患者在其医疗管理中发挥积极作用。因此,识别与FMS患者成为积极参与者相关的因素很重要,因为这可能会影响以患者为中心的护理提供。

目的

本研究的目的是探讨与FMS患者在管理中成为积极参与者相关的因素。

方法

这是一项采用混合方法的系统文献综述方案,采用符合JBI方法的收敛性综合方法。将通过EBSCOhost检索AMED、MEDLINE、PsychINFO和CINAHL数据库。筛选和选择将由两名评审员进行。纳入2005年7月至2024年7月的主要定性、观察性和实验性研究。将使用适当的JBI工具对符合条件的研究进行批判性评价。将提取数据,必要时进行转换,并在不进行荟萃分析的情况下进行综合。

讨论

这项混合方法的系统综述将全面了解与患者成为积极参与者相关的因素,不仅提供患者在其医疗保健中发挥积极作用背后的“是什么”,还提供“为什么”。这将有助于指导未来在支持患者成为FMS管理中的积极参与者方面的研究和实践。

试验注册

本系统综述已在PROSPERO注册(注册号:CRD42024575159)。

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