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增强照顾者能力:解决患病儿童从医院到家过渡期间的需求。

Empowering Caregivers: Addressing Needs During the Hospital-to-Home Transition for Sick Children.

作者信息

Ray Shramana, Shetty Asha P, Dwibedi Bhagirathi

机构信息

Pediatrics, All India Institute of Medical Sciences, Bhubaneswar, Bhubaneswar, IND.

出版信息

Cureus. 2024 Nov 22;16(11):e74276. doi: 10.7759/cureus.74276. eCollection 2024 Nov.

DOI:10.7759/cureus.74276
PMID:39717288
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11664194/
Abstract

OBJECTIVE

The primary aim of this study is to identify the needs of caregivers who are primarily responsible for caring for their children during the transition from the hospital.

METHODOLOGY

A needs assessment survey was conducted among 30 mothers whose children were admitted to the paediatric medicine ward at the All India Institute of Medical Sciences, Bhubaneswar. The researcher utilized a semi-structured questionnaire alongside unstructured discussions to assess the needs and barriers faced by caregivers during hospital transitions.

RESULTS

The findings from the semi-structured questionnaire and informal discussions revealed a range of issues, with the most significant being a lack of knowledge regarding the care domains for children in the post-transition phase. Notably, 100% of caregivers reported a lack of written care instructions as a major barrier to effective care during this period.

CONCLUSION

The transition period is particularly vulnerable concerning the quality of care for children, and both parents and caregivers encounter numerous challenges when moving from hospital to home. To improve this experience for patients and caregivers, it is essential to focus on caregivers' needs and the barriers they face during the hospital-to-home transition.

摘要

目的

本研究的主要目的是确定在患儿从医院过渡期间主要负责照顾孩子的照料者的需求。

方法

对30名孩子入住布巴内斯瓦尔全印医学科学研究所儿科病房的母亲进行了需求评估调查。研究人员使用了一份半结构化问卷以及非结构化讨论,以评估照料者在医院过渡期间面临的需求和障碍。

结果

半结构化问卷和非正式讨论的结果揭示了一系列问题,其中最突出的是在过渡后阶段缺乏关于儿童护理领域的知识。值得注意的是,100%的照料者表示缺乏书面护理指导是这一时期有效护理的主要障碍。

结论

在儿童护理质量方面,过渡时期特别脆弱,父母和照料者在从医院回家的过程中都会遇到众多挑战。为了改善患者和照料者的这种体验,必须关注照料者的需求以及他们在从医院到家的过渡期间所面临的障碍。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/fc52/11664194/92cd7acfd2bd/cureus-0016-00000074276-i02.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/fc52/11664194/fcba9c3abaac/cureus-0016-00000074276-i01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/fc52/11664194/92cd7acfd2bd/cureus-0016-00000074276-i02.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/fc52/11664194/fcba9c3abaac/cureus-0016-00000074276-i01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/fc52/11664194/92cd7acfd2bd/cureus-0016-00000074276-i02.jpg

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