Spees Lisa P, Baggett Chris D, Johnson Katie E, Salas Ana I, Morris Hayley N, Arsali Emma G, Emerson Marc A, Roberson Mya L, Olshan Andrew F, Wheeler Stephanie B
Division of Pharmaceutical Outcomes & Policy, Eshelman School of Pharmacy, University of North Carolina, Chapel Hill, NC.
Lineberger Comprehensive Cancer Center, University of North Carolina, Chapel Hill, North Carolina.
Prev Oncol Epidemiol. 2024;2(1). doi: 10.1080/28322134.2024.2354231. Epub 2024 Jun 6.
A key requirement of community outreach and engagement offices within National Cancer Institute-designated cancer centers is to conduct a comprehensive examination of their catchment area's population, cancer burden, and assets. To accomplish this task, we describe the plan for implementing our initiative, the Cancer Health Assets and Needs Assessment (CHANA). CHANA compiles, into a single source, up-to-date data that describes the cancer landscape of North Carolina's 100 counties.
CHANA utilized a three phased approach: 1) compiling existing data from publicly available sources; 2) analyzing novel data source, which links state cancer registry, multi-payer insurance claims, and area-level contextual data; and 3) conducting surveys of the general public and cancer survivors and key informant interviews with cancer-related community organizations to understand their priorities and resources. These multifaceted data resources are curated and compiled into three key dissemination products: a summary report, county-level profile reports, and interactive online data dashboards.
Through data-driven efforts like CHANA, cancer centers and the communities they serve can better understand gaps in care and information needs, opportunities, and resources to improve health outcomes, and priorities for new research and programmatic endeavors focused on prevention, healthcare access, equity, and quality.
美国国立癌症研究所指定的癌症中心内的社区外展和参与办公室的一项关键要求是对其服务区域的人口、癌症负担和资产进行全面审查。为完成这项任务，我们描述了实施我们的倡议——癌症健康资产与需求评估（CHANA）的计划。CHANA将描述北卡罗来纳州100个县癌症情况的最新数据整合到一个单一来源中。
CHANA采用了三阶段方法：1）从公开可用来源汇编现有数据；2）分析新的数据源，该数据源将州癌症登记处、多付款人保险理赔和区域层面的背景数据相链接；3）对普通公众、癌症幸存者进行调查，并与癌症相关社区组织进行关键信息访谈，以了解他们的优先事项和资源。这些多方面的数据资源经过整理后被汇编成三个关键的传播产品：一份总结报告、县级概况报告和交互式在线数据仪表板。
通过像CHANA这样的数据驱动工作，癌症中心及其服务的社区能够更好地了解护理差距、信息需求、改善健康结果的机会和资源，以及专注于预防、医疗保健可及性、公平性和质量的新研究及项目努力的优先事项。
