Kaptein Ad A, van der Meer Pim B, Fisher Fleur L, van Laarhoven Hanneke W M, Pennebaker James W, Vingerhoets Ad J J M
Department of Medical Psychology, Leiden University Medical Centre, Leiden, the Netherlands.
Department of Psychiatry, University Medical Centre Utrecht, Leiden, the Netherlands.
J Patient Exp. 2024 Dec 23;11:23743735241309472. doi: 10.1177/23743735241309472. eCollection 2024.
To explore "the lived experience" of patients with cancer through narratives, in-depth interviews with 20 patients were conducted in the patients' homes-"at the kitchen table." Interviews were audio-recorded, transcribed, and analyzed following the Linguistic Inquiry and Word Count (LIWC) methodology. Thematic Analysis was used to explore themes in the narratives. Scores on relevant LIWC dimensions of the 20 patients were compared with norm data for respondents without cancer. Patients with cancer scored higher on "anger" and "sadness" (psychologic processes dimension); lower on "insight," "causes," and "tentatives" (cognitive processes dimension); and lower on "religion." Major themes identified from the Thematic Analysis were resilience, fatigue, social relationships, turning inward psychologically, shared decision-making, and psychological support. Narratives of patients with cancer are a source of rich data on how persons with cancer make sense of their illness, its medical management, and its psychological and social consequences. Qualitative methods of data analysis (LIWC; Thematic Analysis) are a highly valuable element in the methodology of exploring patient experience.
为了通过叙事探索癌症患者的“生活经历”,我们在患者家中——“餐桌旁”对20名患者进行了深入访谈。访谈进行了录音、转录,并按照语言调查与字数统计(LIWC)方法进行分析。采用主题分析法探索叙事中的主题。将这20名患者在LIWC相关维度上的得分与无癌症受访者的常模数据进行比较。癌症患者在“愤怒”和“悲伤”(心理过程维度)上得分较高;在“洞察力”“原因”和“尝试”(认知过程维度)上得分较低;在“宗教”方面得分也较低。主题分析确定的主要主题包括复原力、疲劳、社会关系、心理内向、共同决策和心理支持。癌症患者的叙事是关于癌症患者如何理解自己的疾病、其医疗管理以及心理和社会后果的丰富数据来源。定性数据分析方法(LIWC;主题分析)是探索患者体验方法中非常有价值的要素。