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乳腺癌幸存者的健康信息需求:一项综合综述。

Health Information Needs of Breast Cancer Survivors: An Umbrella Review.

作者信息

Gavili Nahid, Sedghi Shahram, Panahi Sirous, Razmgir Maryam

机构信息

Department of Medical Library and Information Science School of Health Management and Information Sciences Iran University of Medical Sciences, Tehran, Iran.

出版信息

Breast J. 2024 Jul 15;2024:5889622. doi: 10.1155/2024/5889622. eCollection 2024.

Abstract

PURPOSE

The aim of this umbrella review was to identify the main information needs of breast cancer survivors. Since several reviews have already been done on this topic, conducting an umbrella review not only combines their results but also gives a comprehensive picture and informative summary of breast cancer survivors' needs.

METHOD

The search was performed in PubMed, Embase, Scopus, Web of Science, ProQuest, Cochrane, and Google Scholar from inception to the end of March 2024. This review was conducted according to the JBI methodology for umbrella reviews, and the report was based on Rutten's category for information needs of patients with cancer. After removing duplicate and irrelevant articles, 14 systematic reviews were included in the analysis. The JBI checklist was used for evaluating the quality of eligible articles.

RESULTS

The information needs were classified into 11 main categories and 86 subcategories. As a result of this umbrella review, one category was added to Rutten's 10 categories. Also, treatment information needs were introduced as the main identified category. Information on supportive care needs ranked second, and body image/sexuality information needs ranked third with a slight difference.

CONCLUSION

The information needs outlined in the present study can serve as a general model to help clinical decision makers and policymakers in order to better understand the needs of the group and meet the information needs of the population. . These recommendations can promote and develop targeted interventions to reduce the psychosocial consequences of breast cancer survivors and increase their quality of life.

摘要

目的

本系统综述的目的是确定乳腺癌幸存者的主要信息需求。由于已经针对该主题进行了多项综述,开展系统综述不仅能整合这些综述的结果,还能全面呈现并提供有关乳腺癌幸存者需求的信息性总结。

方法

检索了从创刊至2024年3月底的PubMed、Embase、Scopus、Web of Science、ProQuest、Cochrane和谷歌学术。本综述按照循证卫生保健国际协作组(JBI)的系统综述方法进行,报告基于鲁滕(Rutten)提出的癌症患者信息需求分类。在剔除重复和不相关文章后,纳入14项系统综述进行分析。使用JBI清单评估纳入文章的质量。

结果

信息需求被分为11个主要类别和86个子类别。通过本系统综述,在鲁滕的10个类别基础上增加了一个类别。此外,治疗信息需求被确定为主要类别。支持性护理需求信息排名第二,身体形象/性方面的信息需求以微弱差距位列第三。

结论

本研究中概述的信息需求可作为一个通用模型,帮助临床决策者和政策制定者更好地了解该群体的需求,满足人群的信息需求。这些建议可促进和开展有针对性的干预措施,以减轻乳腺癌幸存者的心理社会影响,提高其生活质量。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e5b7/11262878/43c6659164db/TBJ2024-5889622.001.jpg

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