• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

哥伦比亚儿科风湿病过渡诊所:对必要缺陷的反思

Transition clinics in pediatric rheumatology in Colombia: reflection on a necessary shortcomings.

作者信息

Ramirez Lauren Natalia, Hoyos María Elisa, Mosquera-Pongutá Angela Catalina, Quintana-López Gerardo

机构信息

Grupo de Investigación Reumavance, Facultad de Medicina, Universidad Nacional de Colombia, Bogotá, Colombia.

Grupo de Investigación Reumavance, Facultad de Medicina, Universidad de los Andes, Bogotá, Colombia.

出版信息

Adv Rheumatol. 2025 Jan 2;65(1):1. doi: 10.1186/s42358-024-00419-2.

DOI:10.1186/s42358-024-00419-2
PMID:39748444
Abstract

INTRODUCTION

Transition clinics are conceived as programs dedicated to the active, multidimensional development of a process that addresses the medical, psychosocial, educational, and vocational needs of pediatric patients suffering from a chronic disease that will persist into adulthood. Their understanding is justified in physiological, psychological, and sociocultural terms on the basis of the differential morbidity and mortality associated with a chronic disease that begins in childhood and prevails into adulthood.

MATERIALS AND METHODS

Here, we reflect on the history, structure, and impact of transition clinics in pediatrics, with an emphasis on pediatric rheumatologic diseases. Additionally, we propose comprehensive reflection as an alternative for the patient, their family, and the medical team, outlining guidelines for development, implementation, and evaluation.

RESULTS

The transition of care should commence in early adolescence, considering each patient's cognitive ability as a condition for the initiation of an educational process involving introspection into the disease. Interdisciplinarity is defined as a team that addresses the clinical, physical, emotional, and social dimensions of each patient and their interaction with the environment within the framework of individualized care and family support. Despite this, the lack of evidence supporting standardized guidelines for the implementation and overall effectiveness evaluation of these interventions was highlighted.

CONCLUSIONS

The transition process is considered successful when the patient is adherent and has a positive and informed perception of their health‒disease journey. We urge the generation of evidence documenting the comprehensiveness of processes inherent to transition clinics as the foundation of necessity.

摘要

引言

过渡诊所被视为致力于积极、多维度开展一个过程的项目,该过程旨在满足患有慢性疾病且病情会持续至成年期的儿科患者在医疗、心理社会、教育和职业方面的需求。基于与始于儿童期并延续至成年期的慢性疾病相关的发病率和死亡率差异,从生理、心理和社会文化角度来看,对过渡诊所的理解是合理的。

材料与方法

在此,我们思考儿科过渡诊所的历史、结构和影响,重点关注儿科风湿性疾病。此外,我们提出全面反思作为患者、其家庭和医疗团队的一种选择,并概述其发展、实施和评估指南。

结果

护理过渡应在青春期早期开始,将每位患者的认知能力作为启动涉及对疾病进行内省的教育过程的条件。跨学科性被定义为一个团队,在个性化护理和家庭支持的框架内,处理每位患者的临床、身体、情感和社会层面以及他们与环境的相互作用。尽管如此,仍强调缺乏支持这些干预措施实施和总体效果评估的标准化指南的证据。

结论

当患者坚持并对其健康 - 疾病历程有积极且明智的认知时,过渡过程被认为是成功的。我们敦促生成证据,记录过渡诊所固有过程的全面性,作为必要性的基础。

相似文献

1
Transition clinics in pediatric rheumatology in Colombia: reflection on a necessary shortcomings.哥伦比亚儿科风湿病过渡诊所:对必要缺陷的反思
Adv Rheumatol. 2025 Jan 2;65(1):1. doi: 10.1186/s42358-024-00419-2.
2
Consensus of the Spanish society of pediatric rheumatology for transition management from pediatric to adult care in rheumatic patients with childhood onset.西班牙儿科风湿病学会关于儿童期发病的风湿性疾病患者从儿科护理过渡到成人护理的管理共识。
Rheumatol Int. 2015 Oct;35(10):1615-24. doi: 10.1007/s00296-015-3273-6. Epub 2015 Apr 28.
3
Transitioning youth with rheumatic conditions: perspectives of pediatric rheumatology providers in the United States and Canada.患有风湿性疾病的青少年的过渡:美国和加拿大儿科风湿病医疗服务提供者的观点
J Rheumatol. 2014 Apr;41(4):768-79. doi: 10.3899/jrheum.130615. Epub 2014 Mar 1.
4
Challenges in transitioning adolescents and young adults with rheumatologic diseases to adult Care in a Developing Country - the Brazilian experience.发展中国家青少年和青年风湿性疾病患者向成人护理过渡面临的挑战——巴西的经验
Pediatr Rheumatol Online J. 2017 May 30;15(1):47. doi: 10.1186/s12969-017-0176-y.
5
Quantitative evaluation of a pediatric rheumatology transition program.儿科风湿病过渡项目的定量评估
Pediatr Rheumatol Online J. 2015 May 24;13:17. doi: 10.1186/s12969-015-0013-0.
6
Models for transition clinics.过渡诊所模式。
Epilepsia. 2014 Aug;55 Suppl 3:46-51. doi: 10.1111/epi.12716.
7
Checklist for rapid assessment of independence in children with pediatric rheumatic diseases in transition to adult medical care.儿科风湿性疾病患儿过渡到成人医疗保健时独立性快速评估检查表。
Mod Rheumatol. 2022 Feb 28;32(2):427-431. doi: 10.1080/14397595.2021.1918858.
8
[Structural quality of rheumatology clinics for children and adolescents. Paper by a task force of the "Society of Pediatric and Adolescent Rheumatology" and of the "Association of Rheumatology Clinics in Germany"].[儿童和青少年风湿病诊所的结构质量。由“儿科和青少年风湿病学会”及“德国风湿病诊所协会”的一个特别工作组撰写的论文]
Z Rheumatol. 2006 Jul;65(4):315-22, 324-6. doi: 10.1007/s00393-006-0056-1.
9
Transition of Patients with Childhood-onset Rheumatic Diseases to Adult Medical Care in Japan.日本儿童期起病的风湿性疾病患者向成人医疗的过渡。
Intern Med. 2024 Jan 1;63(1):25-29. doi: 10.2169/internalmedicine.0859-22. Epub 2022 Oct 19.
10
[Transition in pediatric rheumatology-experiences from the pediatric rheumatism center Sankt Augustin].[小儿风湿病学的转变——来自圣奥古斯丁小儿风湿病中心的经验]
Z Rheumatol. 2018 Oct;77(8):677-684. doi: 10.1007/s00393-018-0511-9.

本文引用的文献

1
Incidence and causes of early hospital readmissions after living donor renal transplant - A single centre study.活体供肾移植后早期住院再入院的发生率及原因 - 一项单中心研究。
Niger J Clin Pract. 2022 Sep;25(9):1413-1417. doi: 10.4103/njcp.njcp_1524_21.
2
Optimizing the multidisciplinary team to enhance care coordination across the continuum for children with medical complexity.优化多学科团队,增强医疗复杂性儿童连续护理的协调。
Curr Probl Pediatr Adolesc Health Care. 2021 Dec;51(12):101128. doi: 10.1016/j.cppeds.2021.101128. Epub 2022 Jan 13.
3
Transition Readiness in Adolescents With Juvenile Idiopathic Arthritis and Childhood-Onset Systemic Lupus Erythematosus.
青少年特发性关节炎和儿童期起病的系统性红斑狼疮患者的过渡准备情况
ACR Open Rheumatol. 2021 Apr;3(4):260-265. doi: 10.1002/acr2.11237. Epub 2021 Mar 12.
4
Transitional Care for Patients with Inflammatory Bowel Disease: Japanese Experience.炎症性肠病患者的过渡期护理:日本经验。
Digestion. 2021;102(1):18-24. doi: 10.1159/000510652. Epub 2020 Oct 8.
5
Transitional care: A new model of care from young age to adulthood.过渡护理:从幼年到成年的新型护理模式。
Health Policy. 2020 Oct;124(10):1121-1128. doi: 10.1016/j.healthpol.2020.08.002. Epub 2020 Aug 13.
6
Transition of pediatric patients with an Auto-inflammatory Disease: an alternative version of the myth.患有自身炎症性疾病的儿科患者的转变:神话的另一个版本。
Mediterr J Rheumatol. 2018 Sep 27;29(3):156-162. doi: 10.31138/mjr.29.3.156. eCollection 2018 Sep.
7
Transition in a paediatric rheumatology unit - experience from a tertiary unit.儿科风湿病科的转变——来自一家三级医院的经验
Acta Reumatol Port. 2019 Oct-Dec;44(4):320-321.
8
Outcomes of Pediatric to Adult Health Care Transition Interventions: An Updated Systematic Review.儿科向成人保健过渡干预的结果:更新的系统评价。
J Pediatr Nurs. 2020 Mar-Apr;51:92-107. doi: 10.1016/j.pedn.2020.01.002. Epub 2020 Jan 22.
9
Development of a transition program for adolescents with congenital heart disease.先天性心脏病青少年过渡项目的开发。
Eur J Pediatr. 2020 Feb;179(2):339-348. doi: 10.1007/s00431-019-03515-4. Epub 2019 Nov 22.
10
Psychological difficulties and parental well-being in children with musculoskeletal problems in the 2011/2012 National Survey of Children's Health.2011/2012 年全国儿童健康调查中患有肌肉骨骼问题儿童的心理困难和父母健康状况。
Rehabil Psychol. 2019 Feb;64(1):87-97. doi: 10.1037/rep0000251. Epub 2018 Oct 8.